#Y'all it maybe time to get an official anxiety diagnosis | Explore Tumblr Posts and Blogs

sociallyanxiousdragon · 1 year

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Okay chronically ill Tumblr:

I get exhausted from sitting upright for a few hours at a time. Standing, especially in one place, for more than 5-10 minutes does the same thing and hurts my back so I can't do that instead

Do y'all have tips? I work a desk job that is thankfully WFH so I'll usually take my break laying in bed or on the couch but then that's a lot of my energy for the day and I still have a hard time making it past the five or six hours mark

Primarily looking for tips with dealing with the fatigue in house and not potential medical diagnoses (unless it is to help me research more tips) but I have put some medical context under the cut if it helps

- I have obstructive sleep apnea and I haven't been using my CPAP lately (I gave myself anxiety about a thing and accidentally stopped for a while and now need to do a deep clean of it)

- I suspect I have long COVID but no official diagnosis

- I don't have a lot of money to go to the doctor and I would prefer to use what I have on getting into therapy and back on mental health meds

- previous blood tests have shown no thyroid issues and that's about the time they give up on my fatigue

- I also previously had low B12, folic acid, and D and now that I list all that out, maybe I should start taking my vitamins again lmao

#jax yacks #chronic illness tips needed #advice needed

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henreyettah · 2 years

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My rosacea (the bumpy kind) is flaring up again so I’m gonna take a moment to vent about it because I’m very tired of it so bear w me here.

I’ve had active rosacea since I was 18.

Rosacea is a chronic skin condition, which usually appears in primarily middle-aged women. Usually it manifests as a persistent red flush across the surface of the face, sometimes with prominent blood vessels showing. There are several, vastly different subtypes of rosacea. It is unknown what the cause of it is, and there is no permanent cure. It tends to come and go in waves, with each wave lasting anywhere between two to nine years on average.

Because I was (and still am) a lot younger than people usually are when they get diagnosed, the doctors I went to kept insisting it was acne, and would recommend drugstore acne products, or tell me to wait and see if it went away on its own.

This, despite me explaining that I’d already tried those things, and it hadn't helped.

When I was 19, after more than half a year of “waiting to see if it got better on its own”, I went to see another doctor, again. I didn't think I’d get any help, because I hadn't before, but it had gotten to the point where my entire cheeks were red and covered in bumps (half a year earlier, it had been only two splotches near my cheekbones). It felt like they were on fire, and it was itching to the point where I wanted to rip my skin off to make it stop, so I decided to go in again.

This time, the lady I saw actually diagnosed me tho. She’d seen papulopustular rosacea (rosacea, but with the fun addition of mild to extreme bumpage) before, and got me a diagnosis, and got me topical medication. Which helped. Y'all don’t understand, within a month it went from burning and hurting... to almost being normal.

I stayed on the medication (Soolantra) for almost two years. During these two years, my skin healed, and the flare-ups calmed down. They still happened, don’t get me wrong. But they became fewer, and didn't hurt as bad. I learned what to avoid (warm and cold temperatures, alcohol, hot drinks, spicy food, stress, chlorine, certain ingredients in food and skincare) and what helped (cucumbers, chamomile tea, aloe, good sunscreen). It’s recommended that you use soolantra for four months, and then see a doctor if it doesn't help, but since it helped I could get my prescription renewed.

January 2021, when I was 20, I decided to see a dermatologist. My goal was to ask for some tips on dealing with rosacea during the colder months of the year, maybe get some pointers in general on how I could better care for my skin. Instead, the woman I saw changed my diagnosis from rosacea to acne, which is not the same. At all. I had just gotten my Soolantra prescription renewed, so I still had my medication, but because she changed my diagnosis I couldn't get it renewed without seeing another doctor, and stating my case. Again.

So, without doing any kind of examination, without looking at the progress pictures I’d been taking for the past year, without listening to the symptoms I had, she changed my diagnosis. Based on my age. Because I was too young for it to be rosacea. Despite the fact that the Soolantra had clearly and visibly helped (which it would not do if it was acne). Despite the other doctor’s notes.

In December last year, my prescription ran out. And my rosacea became worse, again. Worth noting here is that I get irrationally anxious about things. Officially, I don't have anxiety, but in reality, I do panic about stuff.

This, together with the gut-churning feeling that having to sort of defend your own experiences to a medical professional tends to give you, led to me not even trying to get it renewed. Maybe it would’ve worked. But I couldn't stand the idea that yet another person would look at me like I was stupid, and tell me again that I was too young to have the condition that I clearly do have. I didn't wanna sit infront of someone again, and go red again, and have to breathe calmly again like I had to last time.

I did call. I did make an appointment. I cancelled it when they called and asked why I was booking at that clinic, instead of the one where the dermatologist worked. What was I meant to say? “yeah no sorry last time I met that lady, she had me in and out of her office in less than 7 minutes and then I cried in public because she was harsh and changed my diagnosis and I felt like an idiot”? No.

So I did not get it renewed.

Since December, I've been careful with my skin. I stay out of the sun. I try not to do things that will make me red, because that triggers the bumps. I’m careful with what I eat, and what I put on my face. I still get flare-ups. And I’m very tired of it. I don’t mind the scarring I get from the bumps (I always felt that my face was weirdly empty somehow, so I’m actually kinda happy with them) but the flare-ups are the absolute worst.

Especially because they make me not want to do stuff. I don’t wanna leave the house, I don’t wanna be seen. It hurts, it itches, it burns. It looks really bad. I feel like people are always looking at me, which makes it even worse because it makes me feel embarrassed and that makes me even redder.

I’m gonna have to live with this forever, in waves. And it’s fine, but not really. Fingers crossed that it calms down soon, and stays calm for a while. Right now it sucks ass.

#I dont talk about this a lot on here #because why would i #i dont show my face here like I do on insta so it wouldn't make sense to talk about my face issues #but its bothering me a #LOT #right now #if anyone ever told u that rosacea isn't sucky #they were lying #it sucks balls #rosacea #vent rant

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ask-chef-teruteru · 5 years

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"Oh, you poor dear... I know very well how awful that whole experience is. Bad enough that your mama has some kind of affliction and worser still the thought that it could wind up bein' hereditary too. I understand how difficult things are right now, but you need to wait to hear what the official diagnosis is. Yes, there's the possibility that it could be somethin' on the far bad side of the scale, but there's the possibility it could be minor too. Worryin' over people you love is natural and hoo boy don't I know it ain't easy to just stop, but my best advice right now is to wait and see before you assume the worst. Sometimes the scariest thing is not knowing, and it's my hope that that'll be the case here too.

Try to be there for your mama much as you can, okay? She's probably scared too, and while I don't know the details of her ailment, there's a good chance that she ain't feelin' quite right considerin' I'm assumin' y'all went to the doctor to find out it's a thyroid thing in the first place.

I'm gonna apologize now ahead of time because I'm no expert by any means and what with how the thyroid produces hormones, it can potentially affect different things dependin' on what's wrong and if it's under or over producin' or what the exact deal is.

If her problem is manifestin' as pain, maybe do more help around the house so she has less to take care of herself, run errands for her if you're able, maybe make sure your medicine cabinet is stocked up on painkillers that won't interact negatively with any other meds she might be on.

If it's more of a mental change, just try talkin' it through with her, see how best you can help. Fatigue no matter how much rest she's gettin', depression, absent-mindedness, anxiety-- those can all happen too and it's more of a "different strokes for different folks" type thing when it comes to what will or won't help. Showin' her your support and how much you care is never a bad idea though.

Whether it turns out to be somethin' minor or somethin' scarier though, knowing for sure will get y'all started on a way to deal with it how it needs dealt with. This time beforehand, this not knowin' and bein' scared and not knowing how to go about treatin' it may well be the worst part. Even if it turns out to be on the worse end of the scale, it'll still be better than not knowin'. She'll get prescribed up somethin' to help with whatever symptoms she has, and quite possibly somethin' that'll treat what's wrong so it'll be like she's got no ailment at all.

It may be beneficial for you to get tested too for your own peace of mind, though I think you should keep in mind that it ain't guaranteed to be a thing that'll get passed on to you and even if you technically "have" it, you may never get symptoms for yourself.

Unfortunately, I think that's the best advice I can offer until y'all know more. Until that point, I recommend doin' things you think are fun to try to keep your mind off it because worryin' yourself sick is only gonna make you miserable and won't change a thing. Watch movies, read, play games, draw, write, whatever it is you enjoy. It's okay to be upset and panic a while and cry if you need to, but do your best to try to think positive. Chances are good that it won't be worst case scenario, and even at the very worst, there's still things to do about it once a diagnosis is reached.

I hope that helps you at least a little bit, and I want you to know I'll be here for you if you need to talk, okay? I'd appreciate if you kept me updated, though you don't got to if you don't want to. While thyroid afflictions aren't ones I know much about, I do have experience with havin' very, very dear loved ones who've gotten some bleak diagnoses. If nothin' else, know you ain't alone and I'll help you through this as best I can."

#asks #anon #you and your mama have my empathies #talk to me any time you need to okay hon'#i love you and i hope things improve

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