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HIPEC surgery (warning - photos of my abdomen after surgery will be shown)

The night before surgery I was on clear liquids only.. that was hard when all my family members kept talking about food and dessert.. the stomach growl was real. Haha. I spent the night playing mahjong with my family up until I had to pack and get ready to leave the house. An all nighter. Weeee. I really didn’t care to sleep since I don’t usually sleep til the morning anyways and I would be sleeping a lot in the hospital so it was whatever.

My aunt, mom, and I leave to go to the hospital around 4am (super early). We arrive, I’m sent to preop to get ready and I am super nervous.. I realized I forgot to take my anti anxiety Med before leaving the house.. UGH. I ask the nurse if she can ask the doc to give me one while I’m waiting and she said the Anesthesologist can give me something when they are ready to wheel me to the OR. Like wtf? How is that helpful? Why would I need anxiety meds right before I go to sleep for the freaking surgery?!? I need it for the 2hrs of waiting!!! She didn’t even bother to ask! Ughhhh.. like why? She is supposed to be an advocate for me.. Was not happy with her.. then she told me to relax.. HAHA. Glad I won’t see her again. Rude.

Me waiting at preop

Anywho.. next thing I know I’m awake in PACU. I’m groggy and in pain.. and of course felt myself up all over my abdomen to make sure I didn’t get a ileostomy bag. Thank god I did not! I did have a jp drain though. The Dr said he removed the organs he planned on-the uterus, ovaries, omentum, gallbladder along with 3 small things he found in my abdomen. I have no idea where and how big they were. They don’t think they are tumors but the pathology results have not come back yet.. feels like forever waiting for results.. either way, im glad it was found and removed. (Update- the results came back benign! Negative for cancer!)

I’m moved to the ICU and get hooked up to so much equipment. I stayed in the ICU for 2.5days. I had 2 iv’s, an arterial line, Foley catheter, NG tube, JP drain and a wound vac. My throat hurt so damn bad.. every time I swallowed it hurt.. that NG tube fked up my throat. I was also a not allowed eat or drink anything for 2 days until they took it out. I could not wait! Post op day 1 was a killer for me. Just trying to sit up made me cry. They wanted me to walk down the hall while pushing the wheelchair. I literally looked like a old person who has the hump back and couldnt stand straight while walking. The poor nurses were pretty much holding my weight lol. Even helping me scoot up on the bed hurt. My family said my entire body and face was super swollen . I just pictured the scene in Willy wonka and the chocolate factory where that girl turned into a huge blueberry. 🤭 I think the most annoying part of ICU was when they kept giving me blood pressure medication and IV fluids to increase my blood pressure. I normally have low BP like 80-90/50-60 told everyone. Apparently the Med surg unit (Unit I would be at until I get discharged) doesn’t like BP’S under 90. I mean seriously, I can’t be the only one with normal low BP’s.. With all the fluids during and after surgery.. I was 15lbs heavier. Ahh! I know it’s all water weight but damn that’s a lot of water weight. They also gave me potassium and it was so uncomfortable on my veins. Anyone can tell you it hurts..even when it’s diluted. It fked up my veins where on The last night in the ICU I had to get one of my IV’s replaced because anything that went through it (even saline) hurt . It was hurting even if nothing was running.

Anyways, I get cleared and transfer up to the medsurg unit. I was actually feeling pretty good considering just having surgery. I get my NG tube removed and am allowed teeny bits of water/ice. FINALLY. My throat can now get better! By the time I transferred I was making laps around the unit. I also get my wound vac removed. It was so painful because I developed a lot of blisters on the edges of the tape from the wound vac. It looked pretty gross. (Picture below). When they removed it, all the blisters broke and they even rubbed over it pulling the skin off. Then, one of my ivs stopped working so it had to be taken out. Luckily this unit only requires one IV not two like the ICU so I didn’t need it replaced.

Picture of the blisters

Picture of my incision with the wound vac and the jp drain.

Picture of my incision and blisters after wound vac removed

The next morning is where everything went downhill. I got super nauseous and eventually threw up 900cc of bile. My temp was around 101 degrees, and eventually got up to 103. I also had other signs/symptoms that showed that I got septic to something. I had to be transferred back to the ICU. Because they were not 100% sure where the infection came from (they had 2 guesses) I got 2 antibiotics that would treat both areas. My white blood cell count also dropped dramatically to 0.98 and my anc 0.74. This means that I was very susceptible to getting more infections. People had to wear a mask when they come to my room and I had to wear one when I left the room. The good news is my fever went away pretty quickly and I started feeling better. My wbc kept going up and down... I’m hoping it keeps trending up because I cannot leave the hospital until my wbc goes up and becomes stable. EEP.

While I was back in the ICU I had to get a second iv placed.. so now I have had 4 iv’s so far not including the arterial line). I’m connected to all the machines again and it takes forever for me to get to the bathroom since they have to disconnect all the monitors and attach it to a portable one so they made me use a bedside commode instead. Bedside commode?!?! The thought is just gross. I’m peeing and pooping in a room with just a curtain blocking the view. What if someone walked in to talk to me in the middle of my session? It was so nerve wrecking. I’ve cleaned up patients bedside commodes before and it’s fine but now can say that I really understand why patients apologized all the time.

After another 2 days in the icu and being septic.. And another iv needing to be replaced bc it infiltrated.. (apparently my veins are mad weak from all the meds and chemo) (now iv #5) I am finally better to go back to the Med surg unit. I’m transferred back and it feels so nice to use abnormal bathroom again. I’m still only allowed clear fluid and honestly.. even that was hard to do. I had to drink a minimum of 800cc a day and it was a struggle. So many days of not eating and drinking screwed me up. Plus I kept having this underlying nausea that just wouldn’t go away. It turned out I had a small ileus as well- A complication that can happen from abdominal surgery.

Everyday I got blood drawn twice a day.. and lovenox which is a blood thinner to prevent blood clots. Prior to lovenox, they were giving me heparin (which is 3 times a day..). My body was full of bruises all over.

Picture of some of the bruises on my arms. I had a bunch on my thighs too..

Anywho, I’m finally allowed to eat.. and man that was more of a struggle than drinking.. I would take one or two bites and be done.. it didn’t help that the hospital food was completely disgusting.. even simple foods you think they can’t mess up on.. was just gross. I was asked by family what I felt like eating so they can bring it.. but honestly I had no appetite at all. Completely different from when I was on steroids and eating nonstop.. lol. But I tried.. hard.. to eat and drink enough. They wanted to start me on tpn which is the total nutrition through a central line.. and I was not about to have it. I gave a hard hell no.

I could barely sleep.. it just felt like my stomach was being pulled or stretched apart when I moved.. was woken up non stop for meds/ vitals.. when I was able to doze off.. my days pretty much consisted of eating, taking a couple laps around the unit, napping, and repeat. I was still getting some iv fluids to help keep me hydrated.. and of course.. another iv infiltrates.. and another iv had to get started... I had a total of 6iv’s and an arterial line.. it was utterly ridiculous.. I had no more places for ivs! And I freaking hate ivs and getting poked.. but that’s all I got during this stay.. so many I lost count.. sigh..

On and off during my stay but especially the last couple of days, I had severe lower right abdomenal pain that was sharp and jabby. I prevented me from moving at all.. it was downright horrible and worse than my incision.. no one knew what it was from but I guessed maybe the drain that was inside.. I got a ct scan done and it didn’t show anything there but the drain so I got it removed.. the pain immediately disappeared!! It was such a relief!! No pain meds helped at all.. not even the slightest.. so having that relief felt so good. The drain coming out though.. felt like so much pressure and it felt like the spot that hurt was getting pulled on. I swear that drain was stuck there or something.. it was a good amount in my stomach.. I didn’t realize how much of the drain just sat in there.. kinda gross. And yes, I watched the whole thing... hahah.

Another complication I have is that my left upper thigh is numb.. and has been numb.. it never got and still hasn’t gotten any better.. I thought it was the duramorph I got during surgery but after a week it seemed unlikely.. the dr says that it’s most likely because the retractor they used to hold my abdomen opened was pressed on my thigh nerve since I’m smaller than the average patient and dmged it from it being compressed for 8hrs.. he says it will take weeks to months for my leg to return to normal.. hopefully.. but that there is a chance it won’t.. god I hope it comes back. It feels so weird and annoying to have the top of my thigh permanently numb ...

Finally my wbc is stable and continuing to trend upward (although still low) and I’m allowed to go home.. I could not wait to see my babies (my dogs), my family, and just sleep in my own bed!!

Sorry, I know this post was all over the place... i wrote parts of it at different times.. which is why some seems present and some past tense.. and I’m honestly not in the mood to go and fix it all. I will post again how my recovery is going at home soon.

Thank you all for your love and support. ❤️