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To the person with chronic pain reading this post:
-please rest for a minute
-drink some water if you haven’t recently
-make sure you’ve eaten enough today
-take any meds if you forgot
-don’t beat yourself up for anything you didn’t get a chance to do today
-remember there’s always tomorrow
-be kind to yourself and your body
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your 👏🏻 worth 👏🏻 isn't 👏🏻 defined 👏🏻 by 👏🏻 how 👏🏻 productive 👏🏻 you 👏🏻 are 👏🏻
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The embarrassing parts of a disability never stop being embarrassing. The visible parts don't become invisible. Some days you will notice the stares, the looks of confusion or disgust or intrigue, and you'll look inward and feel those same thoughts returning.
It's okay. You are allowed to be upset still, you can be upset and embarrassed for the rest of your life. You'll get used to it most days, but just cuz "it's been 20 years" or "i've been like this my whole life" doesn't make how you feel suddenly invalid.
You can mourn not being able to walk or run forever. You can mourn not being able to socially connect forever. You can mourn being pain-free, medication-free, disability-free. You don't have to "get used to it" or "get over it" so harshly. You can always cry a little, it's okay.
It's okay to be disabled, and it's okay to feel like it's not. You are loved no matter what ♡♡♡
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To who ever needs to hear this, I hope it reaches you:
You are very, very valid in your suffering. You deserve to know what’s wrong with you. It’s not fair that you don’t. You deserve to be happy. You deserve to not feel pain. You deserve the world. You deserve doctors who will listen. You deserve family who understands. You deserve the world. You deserve to be understood. You deserve to be treated correctly. You are not a burden. You are wonderful and I love you.
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I am valid even when my small victory is that I took my meds that day.
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always remember, you do NOT deserve the pain, you did NOT "earn" it, it's not some kind of karma that you have to pay for, it's NOT your fault, you're not guilty for your illness and never will
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It’s okay if you are grieving because of your disability and what it costs you. It’s okay if you celebrate your disability and the way it makes you unique. It’s okay if you feel ambivalent, confused, or conflicted about your disability. It’s okay if you feel a mixture or go back and forth. Your experience is valid.
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ily disabled people
ily disabled people who are dependent on aids
ily disabled people who are too scared to use aids
ily disabled people who have been bullied out of using aids
ily disabled people who feel like they don't need many aids or any at all
ily loud disabled people
ily quiet & mute disabled people
ily disabled people who "make being disabled your entire personality"
ily disabled people who are punk, goth, emo, scene, grunge, metal, vkei, decora and any "wierd" fashion style (especially if you decorate your aids to match you're the coolest)
ily creative disabled people
ily disabled activists
ily disabled people who need a helper
ily disabled people who want to be independent but can't be
ily disabled people who love your independent
ily disabled people who wish they could have a helper
ily disabled people who feel like you're not disabled enough to be valid
ily older disabled people who help younger disabled people
ily young disabled people who help older disabled people
ily overweight disabled people
ily underweight disabled people
ily disabled people trying to lose weight for health
ily disabled people trying to gain weight for health
ily disabled people with invisible disabilities
ily stigmatized disabled people
ily disabled people who don't feel like they fit into any of these phrases
ily disabled people !!
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Little victories
It's one of these days. I need to remind myself of the little things that I do manage to do.
Today I've bundled cardboard and put it outside for recycling. It's something I had postponed for too long and I'm glad it's done.
Feel free to add your own little victories <3
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disabled people i love you. i love you disabled people.
idc if we've never interacted, i love you. i'm glad you exist. life is painful (figuratively and literally) for us disabled people, but i'm glad you're here with me.
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if you have a chronic illness or disability i need you to hear this- this will be long.
you're allowed to feel sad/depressed/down, you're allowed to grieve your life and/or yourself, you're allowed to want it to be over.
you're allowed to have happy moments, you're allowed to enjoy your life and/or aspects of it, you're allowed to smile and just because you feel happy doesn't mean your pain is less.
good days are good and bad days are bad, and it's okay if you have no good days, and it's okay if you have mostly good days. it's okay if you're not diagnosed, it's okay if you are, and it's okay if you have lots of diagnoses. any of this doesn't make you any less valid.
no one gets to tell you that what you're feeling is not what you are feeling, just because you portray a picture of yourself to be something differently.
fuck being 'strong' and 'brave', you're surviving and every minute that you do is a minute of your life that's yours and only yours to choose how you live, don't let other's opinions on how they think a chronically ill/disabled person should live govern or influence your life. it's yours.
love you all, my dears
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You deserve a happy ending. No matter what the situation is, no matter how hard it is to survive and cope. You deserve a true genuine happy ending.
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This ^^^^
Disability positivity is recognizing your disability, and adapting to it. It is the small wins each day, the things you accomplish.
Getting out of bed is an accomplishment.
Completing that task, however small it may seem, is an accomplishment.
Reading that book, is an accomplishment.
Making that thing, is an accomplishment.
Cooking dinner, is an accomplishment.
And even when you can't do all of that, just remembering to have patience with yourself and that productivity does not equal to your value as a person, is an accomplishment.
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It hurts having sensory issues. I feel like there’s a lot of little sacrifices. My family has to leave an event early because of me. I feel awful and take forever to recover from a friend’s party. Just going to the store exhausts me on some days. I have to miss important events. And other people don’t get it. It’s just a store, and they’ve seen me at much louder. I know it’s hard to understand my abilities differ from day to day.
I understand how it is, struggles like that change each day and it can be hard to feel guilt over your struggles. Sometimes these things are out of our control, but these little sacrifices have a purpose. It's okay to miss out if it means you aren't hurting. And it's okay to leave early if it's too exhausting. Taking care of your health is what matters most, and it's nice to be reminded of that sometimes.
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been getting really good at finishing my water bottles. really important for me to drink lots of fluids but i have a hard time remembering so im rlly proud of myself
Lets gooo! You should be proud, remembering to hydrate is such a win
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Is this solely for physical disability or is it mental and physical?/genq
Disability positivity for this blog is used for both physical and mental disability 💛
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