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patientc · 4 years
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Janelle Monáe - VR Performance [HBO’s Lovecraft Country Sanctum]
https://www.instagram.com/monaedroid/
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patientc · 4 years
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Saw a post where someone made fun of another persons atypical way of typing and when they were then told that the person in question type like that because of a disability, they went “how was I supposed to just know that?” - and in case anyone wasn’t aware the answer to that kind of fuckery is: 
“You’re not supposed to know that, you’re just supposed to not make fun of anyone’s harmless differences regardless of whether they’re disabled or not. You’re not supposed to be able to tell “weird” abled neurotypicals and disabled/mentally ill people apart, you’re just supposed to treat people with respect generally speaking. It’s not that hard. “I didn’t know they were disabled” is just not the excuse you think it is cause you’re not supposed to make fun of anyone for completely harmless differences regardless of whether said differences are related to a disability or not.
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patientc · 4 years
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Me, guarded by my loyal pittie, Nissi. 
A combative post. Here, have a nice picture of Nissi & I on our couch. Times are tough lately. Covid19 is still killing us, and there is no end in sight. Do not inject disinfectant into your lungs our anywhere else! For fuck's sake, people.  The 'helpful' effort in question is Amazon's policy to cordon off PPE (personal protection equipment) to be sold only to hospitals. The public version of this on their web page can be read here and more specifically, here. You do not have to read it now, once you go looking for gear you might need you will be sent to this over and over again.  The issue discussed here is not just a problem at Amazon and it's holdings, this kind of decision making is all over the place. Amazon is the place where I am struggling with this the most. Some policies meant to help just make things worse.  I am interested in purchasing masks. No I am not a hospital or medical practice oriented business. I am someone struggling with auto-immune deficiencies. So I am a person that needs this kind of help more than a regular person with a regularly working immune system. According to my doctor, general medical guidance, and specific lupus guidance.  Other sorts of folks that need extra protection: cancer and chemo patients, diabetics, people with MS, ME, SLE/lupus, organ transplant recipients, people with replaced joints, older folks... Remember that scary list you hoped would not include you or your loved ones? Yeah, that list. If you are not on it, someone in your life will be, you can count on that. Usually we do not afforded any extra thought or notice, but we are in fact extra vulnerable. Perhaps in order to get away from the fact that Amazon's system initially allowed predatory market controlling behavior on the part of speculators, they have gone too far in the other direction and currently allow no sales of PPE to the general public. There are no exceptions for people that may be extra vulnerable and trying to stay out of the very places that can purchase PPE. I want to say that again: in the middle of a plague Amazon will not let sick or disabled people to buy lifesaving gear.  No exceptions, no more finely tuned policy in sight.  Maybe they should go ask some NYC nurses if they would rather see people like me in a mask in public or clogging up their emergency room. Sure, cloth masks are now recommended for use by the public but that only protects you from me - and I already know I do not have it. How? Because I went through a two week quarantine after suspected exposure at my doctor's office. My family and I started staying home when it was first recommended, and we will be at home except for essential errands, until the stay at home orders are no longer recommended. It was easy to find gloves, gowns, and shields on their site that I could buy. Hell, I did buy some gloves. Masks are blocked much more stringently.  This is an easy fix - put account limits on monthly purchases. Require contact through the standard chat help windows or even phone calls with issue trained account help representatives. Tag accounts that do buy restricted gear so that they come to company attention if they try to sell masks later. Contacting Amazon got me sent back to the same document listed above, over and over again - even if I start the conversation with "I read your statement regarding PPE and #Covid19..."  Next time you see those tallies of the sick and the dead, maybe you will wonder along with me, about how many of those folks would still be here if they could have protected themselves. Yes, I am aware of the stated goals of leaving this gear for purchase by hospitals and I do somewhat agree. Nurses, techs, and staff need the right gear to to their job. That point is getting a lot of play everywhere, but for the record I want people to know about this particular consequence of knee jerk over reactions. Sick people wanting to avoid Covid19 are not the cause of the shortage: US government corruption, neglect of the emergency stockpiles, for profit hospitals using "just in time" supply chains, the wicked looking to corner markets... That is one of many reasons why people are dying for the lack of PPE.
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patientc · 4 years
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Dear Reader, let us just wade right in here. Recently you may have heard a term new to most: rationed health care (RHC). What is it? It is the medical community's response to running out of doctors, equipment, or even human organs. It is fascism and bigotry that most USians can either ignore or give their tacit approval. I know that the title above may seem to be overly ripe click bait, but the truth is more murky than your local lab coat may be willing to admit.
Nissi, a black pittie, looking sadly at the camera. 
Here in the early spring of 2020, the spread of a novel corona virus is infecting people with Covid19. While less ambitious than the Black Plague, it is currently associated with a 2-5% fatality rate, with that rate increasing dramatically for those that have managed to kick around on this dirtball longer than most, those making the best of life with other conditions like diabetes, cancer, or other chronic conditions. The best data on US standards prior to Covid19 can be found in the Uniform Anatomical Gift Act, a non binding document adopted state by state (sometimes with changes.) The argument goes that first come first serve is UNFAIR in a medical crisis. I watched a nurse, in real time, talk as though saying that some jaggoff with young kids is more deserving of medical supplies and effort than a grandma with a poor pancreas. His youth and status as someone that could mash their meat against someone else's meat enough to make yet more meat makes him more worthy of LIFE ITSELF. Is that how you want your Granny to leave this Earth?  Do you think that would be fair to her and her family? This problem is not a surprise. We knew we had too few ventilators, too few beds, too few caregivers. The Obama Administration knew, and told this clown car known as the Trump Administration. The WHO knew, Bill Gates knew, all credible sources that looked at the problem knew. They knew that we would need to ration care during a health emergency like this one and our powers that be DO NOTHING. DID NOTHING. And as soon as the public looks away, they will go right back to it unless something changes.  At the center of this disaster is negligence at both the corporate and governmental level. Profit making hospitals have to ration their money into the features of a hospital that can generate profit. That profit comes from you, the patient, the taxpayer and goes to the very top of their corporate chain. It does not go to new buildings to provide more health care to the less privileged making them also under-served. It does not go to buying equipment that may only get used in an emergency. And the US government allowed it. I am not knocking an individual person here. Nor do I have a chance in this fight - if infected, I am likely to die at home long before I would give consent to be taken to a hospital in this pandemic. My crippled immune system would make me more likely to get sick from the germs in an ER, and the stress would cause a flare that would go unattended by most staff even in the best of times. Even if I were to go to an ER for something else, Covid19, germs, worn out & stressed staff not able to pay attention to special needs cases, and my body's stress response means I would die of one or the other. So I have made the decision to stay home, to die at home if it comes to that: surrounded by those that can care for me, that care about me, in however much peace and comfort we can muster.  Individuals run from the responsibility of their own decisions by hiding as a cog in a machine, just a representative for a corporation they barely understand, let along control. Modern doctors do not stand up for the poor like they should. As of yesterday, apparently this country realized that black and brown folk are 70% of Covid19 deaths. This is the result of a chain of inequity of which the hospitals were the last link of the chain. THIS IS ALSO THE RESULT OF RATIONED CARE. You can disagree with my earlier statement about bigotry in RHC, but the truth is in thousands of dead black and brown bodies. There is no fairness in a plague. There is no fairness in a hospital where infection floats from room to room on garb that has not been changed or  sterilized. There is no fairness in death. None. First come first served has the benefit of being something that we do see as fair in other circumstances. It also has the benefit of rewarding those that took action early. We can do better. We can make sure that we need to ration less the next time, and the time after that.  You are welcome to do your own research, (find out how much your own life is worth, you may be surprised.) I did before I ranted above. Much love to health care workers in general and ALL those workers that make sure we can live though this: from green grocers to ER nurses to delivery drivers to electricians. You are seen, needed, and awesome. 
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patientc · 4 years
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Hallo, there. It sure has been a minute. So, yeah, obvious title is obvious. Actually, here there has been little change between pre-shelter/safety/health/Covid isolation/quarantine/just in case lock down and during it for me and mine. We shop a little further out, order everything we can and try to be mindful.  On a happy note, congratulations to me for surviving a formal quarantine order. No fancy gown or certificate, so I admit I feel a little cheated. I had to go to my doctor's office for my quarterly Criminal Yet? pain patient visit and sometime during the day a patient that tested positive for Covid-19 was in the same building. (Not that they had any tests for us, the hoi polloi. Their rep said they had none at all but vapor locked when I asked how they could know a C19 patient was there with such a certainty as to change our lives so dramatically.) As of April 2nd I am free & clear to only be as worried miserable as everybody else! That is right. In my county there were no tests available for a aging, disabled, immunocompromised woman even when suspected of being exposed to something as deadly as this coronavirus. I have debated the future of this blog so many times I can hardly count them all. There are many more disability blogs out there than ever before and they are written by smarter, sharper, and more insightful people saying most of the things I think about saying here. I do need to get some shit off of my chest, from Buddhism to the Bore in Chief and I suspect if I keep filling the ears of my Guys, they may go mad - and it just is not fair to corner them during a pandemic faux quarantine.  Windows is nagging me about yet another update, so I will see you in the next entry - or the previous ones if you so desire. Look around, get a feel of the place. Thanks for stopping by!
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patientc · 4 years
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The Mandalorian’s Basic Guide to Social Distancing (and good hygiene)
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patientc · 4 years
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“Compassion hurts. When you feel connected to everything, you also feel responsible for everything. And you cannot turn away. Your destiny is bound with the destinies of others. You must either learn to carry the Universe or be crushed by it. You must grow strong enough to love the world, yet empty enough to sit down at the same table with its worst horrors.”
— Andrew Boyd (via quotemadness)
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patientc · 4 years
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bi🤟irl
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patientc · 4 years
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Know Your Rights
“These pocket-sized know-your-rights booklets are designed to be a practical resource for people dealing with law enforcement. The 16-page primer advises people of their rights when confronted by FBI agents or the Department of Homeland Security. It also includes information for noncitizens and minors. These booklets are available for free download below. Printed booklets (in English, Spanish, Arabic) can be obtained by going to nlg.org/kyrbooklets .”
Get the booklets here and please share!
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patientc · 4 years
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All of this post. Fucking perfect.
Re: the post you reblogged about Bush. I'm 21 and tbh feel like I can only vote for Bernie, can you explain if/why I shouldn't? Thanks and sorry if this is dumb or anything.
Oh boy. Okay, I’ll do my best here. Note that a) this will get long, and b) I’m old, Tired, and I‘m pretty sure my brain tried to kill me last night. Since by nature I am sure I will say something Controversial ™, if anyone reads this and feels a deep urge to inform me that I am Wrong, just… mark it down as me being Wrong and move on with your life. But also, really, you should read this and hopefully think about it. Because while I’m glad you asked this question, it feels like there’s a lot in your cohort who won’t, and that worries me. A lot.
First, not to sound utterly old-woman-in-a-rocking-chair ancient, people who came of age/are only old enough to have Obama be the first president that they really remember have no idea how good they had it. The world was falling the fuck apart in 2008 (not coincidentally, after 8 years of Bush). We came within a flicker of the permanent collapse of the global economy. The War on Terror was in full roar, the wars in Iraq and Afghanistan were at their height, we had Dick Cheney as the cartoon supervillain before we had any of Trump’s cohort, and this was before Chelsea Manning or Edward Snowden had exposed the extent of NSA/CIA intelligence-gathering/American excesses or there was any kind of public debate around the fact that we were all surveilled all the time. And the fact that a brown guy named Barack Hussein Obama was elected in this climate seems, and still seems tbh, kind of amazing. And Obama was certainly not a Perfect President ™. He had to scale back a lot of planned initiatives, he is notorious for expanding the drone strike/extrajudicial assassination program, he still subscribed to the overall principles of neoliberalism and American exceptionalism, etc etc. There is valid criticism to be made as to how the hopey-changey optimistic rhetoric stacked up against the hard realities of political office. And yet…. at this point, given what we’re seeing from the White House on a daily basis, the depth of the parallel universe/double standards is absurd.
Because here’s the thing. Obama, his entire family, and his entire administration had to be personally/ethically flawless the whole time (and they managed that – not one scandal or arrest in eight years, against the legions of Trumpistas now being convicted) because of the absolute frothing depths of Republican hatred, racial conspiracy theories, and obstruction against him. (Remember Merrick Garland and how Mitch McConnell got away with that, and now we have Gorsuch and Kavanaugh on the Supreme Court? Because I remember that). If Obama had pulled one-tenth of the shit, one-twentieth of the shit that the Trump administration does every day, he would be gone. It also meant that people who only remember Obama think he was typical for an American president, and he wasn’t. Since about… Jimmy Carter, and definitely since Ronald Reagan, the American people have gone for the Trump model a lot more than the Obama model. Whatever your opinion on his politics or character, Obama was a constitutional law professor, a community activist, a neighborhood organizer and brilliant Ivy League intellectual who used to randomly lie awake at night thinking about income inequality. Americans don’t value intellectualism in their politicians; they just don’t. They don’t like thinking that “the elites” are smarter than them. They like the folksy populist who seems fun to have a beer with, and Reagan/Bush Senior/Clinton/Bush Junior sold this persona as hard as they possibly could. As noted in said post, Bush Junior (or Shrub as the late, great Molly Ivins memorably dubbed him) was Trump Lite but from a long-established political family who could operate like an outwardly civilized human.
The point is: when you think Obama was relatively normal (which, again, he wasn’t, for any number of reasons) and not the outlier in a much larger pattern of catastrophic damage that has been accelerated since, again, the 1980s (oh Ronnie Raygun, how you lastingly fucked us!), you miss the overall context in which this, and which Trump, happened. Like most left-wingers, I don’t agree with Obama’s recent and baffling decision to insert himself into the 2020 race and warn the Democratic candidates against being too progressive or whatever he was on about. I think he was giving into the same fear that appears to be motivating the remaining chunk of Joe Biden’s support: that middle/working-class white America won’t go for anything too wild or that might sniff of Socialism, and that Uncle Joe, recalled fondly as said folksy populist and the internet’s favorite meme grandfather from his time as VP, could pick up the votes that went to Trump last time. And that by nature, no one else can.
The underlying belief is that these white voters just can’t support anything too “un-American,” and that by pushing too hard left, Democratic candidates risk handing Trump a second term. Again: I don’t agree and I think he was mistaken in saying it. But I also can’t say that Obama of all people doesn’t know exactly the strength of the political machine operating against the Democratic Party and the progressive agenda as a whole, because he ran headfirst into it for eight years. The fact that he managed to pass any of his legislative agenda, usually before the Tea Party became a thing in 2010, is because Democrats controlled the House and Senate for the first two years of his first term. He was not perfect, but it was clear that he really did care (just look up the pictures of him with kids). He installed smart, efficient, and scandal-free people to do jobs they were qualified for. He gave us Elena Kagan and Sonia Sotomayor to join RBG on the Supreme Court. All of this seems… like a dream.
That said: here we are in a place where Biden, Bernie Sanders, and Elizabeth Warren are the front-runners for the Democratic nomination (and apparently Pete Buttigieg is getting some airplay as a dark horse candidate, which… whatever). The appeal of Biden is discussed above, and he sure as hell is not my favored candidate (frankly, I wish he’d just quit). But Sanders and Warren are 85% - 95% similar in their policy platforms. The fact that Michael “50 Billion Dollar Fortune” Bloomberg started rattling his chains about running for president is because either a Sanders or Warren presidency terrifies the outrageously exploitative billionaire capitalist oligarchy that runs this country and has been allowed to proceed essentially however the fuck they like since… you guessed it, the 1980s, the era of voodoo economics, deregulation, and the free market above all. Warren just happens to be ten years younger than Sanders and female, and Sanders’ age is not insignificant. He’s 80 years old and just had a heart attack, and there’s still a year to go to the election. It’s also more than a little eye-rolling to describe him as the only progressive candidate in the race, when he’s an old white man (however much we like and approve of his policy positions). And here’s the thing, which I think is a big part of the reason why this polarized ideological purity internet leftist culture mistrusts Warren:
She may have changed her mind on things in the past.
Scary, right? I sound like I’m being facetious, but I’m not. An argument I had to read with my own two eyes on this godforsaken hellsite was that since Warren became a Democrat around the time Clinton signed Don’t Ask Don’t Tell, she sekritly hated gay people and might still be a corporate sellout, so on and etcetera. (And don’t even get me STARTED on the fact that DADT, coming a few years after the height of the AIDS crisis where it was considered God’s Judgment of the Icky Gays, was the best Clinton could realistically hope to achieve, but this smacks of White Gay Syndrome anyway and that is a whole other kettle of fish.) Bernie has always demonstrably been a democratic socialist, and: good for him. I’m serious. But because there’s the chance that Warren might not have thought exactly as she does now at any point in her life, the hysterical and paranoid left-wing elements don’t trust that she might not still secretly do so. (Zomgz!) It’s the same element that’s feeding cancel culture and “wokeness.” Nobody can be allowed to have shifted or grown in their opinions or, like a functional, thoughtful, non-insane adult, changed their beliefs when presented with compelling evidence to the contrary. To the ideological hordes, any hint of uncertainty or past failure to completely toe the line is tantamount to heresy. Any evidence of any other belief except The Correct One means that this person is functionally as bad as Trump. And frankly, it’s only the Sanders supporters who, just as in 2016, are threatening to withhold their vote in the general election if their preferred candidate doesn’t win the primary, and indeed seem weirdly proud about it.
OK, boomer Bernie or Buster.
Here’s the thing, the thing, the thing: there is never going to be an American president free of the deeply toxic elements of American ideology. There just won’t be. This country has been built how it has for 250 years, and it’s not gonna change. You are never going to have, at least not in the current system, some dream candidate who gets up there and parrots the left-wing talking points and attacks American imperialism, exceptionalism, ravaging global capitalism, military and oil addiction, etc. They want to be elected as leader of a country that has deeply internalized and taken these things to heart for its entire existence, and most of them believe it to some degree themselves. So this groupthink white liberal mentality where the only acceptable candidate is this Perfect Non-Problematic robot who has only ever had one belief their entire lives and has never ever wavered in their devotion to doctrine has really gotten bad. The Democratic Party would be considered… maybe center/mild left in most other developed countries. It’s not even really left-wing by general standards, and Sanders and Warren are the only two candidates for the nomination who are even willing to go there and explicitly put out policy proposals that challenge the systematic structure of power, oppression, and exploitation of the late-stage capitalist 21st century. Warren has the billionaires fussed, and instead of backing down, she’s doubling down. That’s part of why they’re so scared of her. (And also misogyny, because the world is depressing like that.) She is going head-on after picking a fight with some of the worst people on the planet, who are actively killing the rest of us, and I don’t know about you, but I like that.
Of course: none of this will mean squat if she (or the eventual Democratic winner, who I will vote for regardless of who it is, but as you can probably tell, she’s my ride or die) don’t a) win the White House and then do as they promised on the campaign trail, and b) don’t have a Democratic House and Senate willing to have a backbone and pass the laws. Even Nancy Pelosi, much as she’s otherwise a badass, held off on opening a formal impeachment inquiry into Trump for months out of fear it would benefit him, until the Ukraine thing fell into everyone’s laps. The Democrats are really horrible at sticking together and voting the party line the way Republicans do consistently, because Democrats are big-tent people who like to think of themselves as accepting and tolerant of other views and unwilling to force their members’ hands. The Republicans have no such qualms (and indeed, judging by their enabling of Trump, have no qualms at all). 
The modern American Republican party has become a vehicle for no-holds-barred power for rich white men at the expense of absolutely everything and everyone else, and if your rationale is that you can’t vote for the person opposing Donald Goddamn Trump is that you’re just not vibing with them on the language of that one policy proposal… well, I’m glad that you, White Middle Class Liberal, feel relatively safe that the consequences of that decision won’t affect you personally. Even if we’re due to be out of the Paris Climate Accords one day after the 2020 election, and the issue of climate change now has the most visibility it’s ever had after years of big-business, Republican-led efforts to deny and discredit the science, hey, Secret Corporate Shill, am I right? Can’t trust ‘er. Let’s go have a craft beer.
As has been said before: vote as far left as you want in the primary. Vote your ideology, vote whatever candidate you want, because the only way to make actual, real-world change is to do that. The huge, embedded, all-consuming and horrible system in which we operate is not just going to suddenly be run by fairy dust and happy thoughts overnight. Select candidates that reflect your values exactly, be as picky and ideologically militant as you want. That’s the time to do that! Then when it comes to the general election:
America is a two-party system. It sucks, but that’s the case. Third-party votes, or refraining from voting because “it doesn’t matter” are functionally useless at best and actively harmful at worst.
Either the Democratic candidate or Donald Trump will win the 2020 election.
There is absolutely no length that the Republican/GOP machine, and its malevolent allies elsewhere, will not go to in order to secure a Trump victory. None.
Any talk whatsoever about “progressive values” or any kind of liberal activism, coupled with a course of action that increases the possibility of a Trump victory, is hypocritical at best and actively malicious at worst.
This is why I found the Democratic response to Obama’s “don’t go too wild” comments interesting. Bernie doubled down on the fact that his plans have widespread public support, and he’s right. (Frankly, the fact that Sanders and Warren are polling at the top, and the fact that they’re politicians and would not be crafting these campaign messages if they didn’t know that they were being positively received, says plenty on its own). Warren cleverly highlighted and praised Obama’s accomplishments in office (i.e. the Affordable Care Act) and didn’t say squat about whether she agreed or disagreed with him, then went right back to campaigning about why billionaires suck. And some guy named Julian Castro basically blew Obama off and claimed that “any Democrat” could beat Trump in 2020, just by nature of existing and being non-insane.
This is very dangerous! Do not be Julian Castro!
As I said in my tags on the Bush post: everyone assumed that sensible people would vote for Kerry in 2004. Guess what happened? Yeah, he got Swift Boated. The race between Obama and McCain in 2008, even after those said nightmare years of Bush, was very close until the global crash broke it open in Obama’s favor, and Sarah Palin was an actual disqualifier for a politician being brazenly incompetent and unprepared. (Then again, she was a woman from a remote backwater state, not a billionaire businessman.) In 2012, we thought Corporate MormonBot Mitt Fuggin’ Romney was somehow the worst and most dangerous candidate the Republicans could offer. In 2016, up until Election Day itself, everyone assumed that HRC was a badly flawed candidate but would win anyway. And… we saw how that worked out. Complacency is literally deadly.
I was born when Reagan was still president. I’m just old enough to remember the efforts to impeach Clinton over forcing an intern to give him a BJ in the Oval Office (This led by the same Republicans making Donald Trump into a darling of the evangelical Christian right wing.) I’m definitely old enough to remember 9/11 and how America lost its mind after that, and I remember the Bush years. And, obviously, the contrast with Obama, the swing back toward Trump, and everything that has happened since. We can’t afford to do this again. We’re hanging by a thread as it is, and not just America, but the entire planet.
So yes. By all means, vote for Sanders in the primary. Then when November 3, 2020 rolls around, if you care about literally any of this at all, hold your nose if necessary and vote straight-ticket Democrat, from the president, to the House and Senate, to the state and local offices. I cannot put it more strongly than that.
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patientc · 4 years
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My 26 yr old sister still says things out loud like ‘ermagerd’ and ’___ ALL the things!’ Like…is that what’s gonna happen to me?am I going to be 30 still saying stupid shit like O shit waddup! Are all the youngins gonna be embarrassed by my use of outdated memes….how long until I myself am not Hip With It….how long until I am no longer a trendy memer…
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patientc · 4 years
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Know Your Rights
“These pocket-sized know-your-rights booklets are designed to be a practical resource for people dealing with law enforcement. The 16-page primer advises people of their rights when confronted by FBI agents or the Department of Homeland Security. It also includes information for noncitizens and minors. These booklets are available for free download below. Printed booklets (in English, Spanish, Arabic) can be obtained by going to nlg.org/kyrbooklets .”
Get the booklets here and please share!
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patientc · 5 years
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Some yay news for today🏳️‍🌈🎉
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patientc · 5 years
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[Photo: native woman protester wears a “Chinga La Migra” (”Fuck immigration enforcement agencies”) T-shirt, while behind her another protester carries a sign saying, “I am Native American. My people and I would appreciate it if the rest of you could show us your papers.”] 
Photo source
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patientc · 5 years
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“The past had been written by men. But the future, pregnant with possibilities, the future was a woman.”
— Imajica, Clive Barker (via ilvermorny-valedictorian)
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patientc · 5 years
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Facebook upholds white supremacy without flinching. (source)
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patientc · 5 years
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Happy Birthday to our ArchAndroid, Electric Lady, Dirty Computer & FreeAssMothaFucka in Chief!! JANELLE MONÁE
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