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hoshiyoshis · 9 hours
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What I Want You To Know About Long COVID
Well lads, I've been suffering from Long COVID for over a year now. My life is at a complete standstill. I'm 25 years old and I'm too sick to go back to school, I can't work, I had to move back in with my parents and I'm still stuck here.
Here are just a few things I wish people knew about Long COVID, including things I didn't know myself until I got it.
COVID destroys your immune system. Yes, even if you don't have Long COVID. Are you getting sick more often now? When you get sick, does it last longer? There are many studies showing that COVID causes t cell depletion, even in mild COVID cases! T cells are how your body remembers how to fight off infections you've had before so losing those cells? Bad news.
Your initial infection can be mild and you can still get Long COVID. Right from Yale Medicine, "Most people with Long COVID had mild acute COVID." (This is also a good link for a basic Long COVID overview).
There can be a gap of time between when you "get better" from the initial COVID infection to the onset of Long COVID symptoms. Some people get sick with an initial COVID infection and never get better. Some get better and then weeks or months later start developing Long COVID symptoms. Long COVID symptoms can even fluctuate over time, can go away for months and then suddenly come back.
So many people have Long COVID and don't realize it. Do you feel more tired lately but no matter how much you sleep, nothing helps? Is it harder to concentrate at work or school? Can you just not think like you used to? You could have Long COVID and not even know it. Even mild post-COVID symptoms are still Long COVID.
COVID can do anything to your body. Long COVID has over 200 recognized symptoms and can affect basically any part or system of your body. There is no one mechanism or cause of Long COVID which unfortunately also means there's no one cure either.
The effects of COVID are cumulative. Each COVID reinfection increases your chances of developing Long COVID. COVID is also affecting your body in other ways, yes, even if you're otherwise young and healthy! "Repeat COVID-19 infections increase risk of organ failure, death".
Once you have Long COVID, repeat COVID infections will make your symptoms worse. "80% [of Long COVID patients] saw their symptoms worsen [from reinfection]. In 60% of people who were in recovery or remission from Long COVID, reinfection caused a recurrence of Long COVID."
There is a lot more I want to say about Long COVID but I want to keep this post at least somewhat manageable to read. Like how when COVID is contracted during pregnancy, those COVID-exposed fetuses have a 6.3-fold increased risk of motor developmental delays, or that another study found 50% of babies exposed to COVID in utero had developmental delays.
You need to keep caring about COVID, for others around you and also for yourself even if you're "healthy". Everyone is at risk. And don't forget 40-60% of COVID infections are asymptomatic, which is why masking even if you feel fine is crucial. The only way right now to not get Long COVID is to not get COVID in the first place. It's not too late, if you've stopped masking it's never too late to start again! I know it's easy to get distracted by things in your life that seem more real than the possibility of getting sick some time in the future, and the peer pressure to not mask can be intense. But it only feels less real or less important until your entire life is having Long COVID. Trust me.
I know this is a complicated issue, many people can't afford to stay home when sick even if they want to because of their jobs, there are disgusting policies trying to ban wearing masks, but please if you can. Keep masking. Masking works, masking saves lives.
This post got a bit longer than I wanted so below the cut is a non-exhaustive list of my Long COVID symptoms and some of my experiences as one of the "healthy young people" who got "unlucky". cw brief mention of suicidal ideation.
Welcome to the Thunderdome that is my body with Long COVID. Keep in mind these are just my experiences and symptoms, Long COVID can cause any range of symptoms at varying severities.
Dysautonomia: Exercise intolerance, Post-Exertional Malaise (PEM), fatigue, and heat intolerance. What do those things mean? Here's some specific examples. Absolutely terrible circulation I am so cold all the time but also, if I get a little too warm I will pass out. Eating hot food makes my heart rate spike, I sweat, my body feels heavy. Blood pooling and pins and needles in my feet when I walk. Don't even think about exercising past walking, it's impossible. I used to work out an hour a day 4 times a week and now walking up one flight of stairs makes my heart pound and I can't breathe. Can't take even just warm showers anymore or I will pass out. Heat rashes from being in the sun for 10 minutes.
Digestive issues: Honestly too many to name but: constant bloating, extreme nausea, constipation, slow motility, lack of appetite, just so much cramping and pain. I lost 18 pounds from Long COVID, as someone who was already considered underweight their entire life, and almost had to get a shunt put into my chest to deliver nutrients because I was nearly completely unable to eat. For the first 6 months of Long COVID, if I could manage 600 calories a day, that was a good day.
Histamine intolerance: Oh boy. My worst symptoms, I don't even know where to start with it. If you know Mast Cell Activation Syndrome (MCAS) it's very similar. I can only eat 19 foods. If i eat a single bite of something not on that list, it's 48 hours of absolute hell. Coughing, migraines, itchy eyes, such extreme nausea I cannot even describe it, panic/feeling of doom, racing heart rate, derealization, rash, uncontrollable muscle tremors. I only learned about histamine intolerance 5 months into having Long COVID so before that, I was experiencing these symptoms nearly every single day. Terrifying isn't even a strong enough word to describe how it felt to experience all this and have no idea what it was, how to stop it, or if it would ever stop. Really dark times.
Neurological issues: More of that derealization. Inability to concentrate. Anxiety. OCD-like symptoms such as thoughts getting "stuck" in my head, repeating 24/7 completely unable to stop them, genuinely felt like my brain had cracked open and I had lost my mind. Constant dizziness like I'm on a boat.
Sleep issues: I sleep like garbage. I have insomnia, I wake up dozens of times every night and every single time I sleep I have intensely vivid dreams. I can't sleep longer than 7 hours total no matter how exhausted I am. It is exhausting. I'm exhausted, I'm so so tired.
And finally. Just. Really intense suicidal ideation. My body, my health, my entire life has been stolen from me because someone else decided my life was worth less to them than wearing a mask or staying home if they feel sick. Before I got Long COVID, I was preparing to go to South Korea to teach English, then on to a PhD in neurolinguistics, I was supposed to meet my long distance partner and had already booked plane tickets when I got sick. All of that has been destroyed.
Most of us with Long COVID are stuck in a cycle of being extremely sick, then if you're lucky you'll slowly get better over months, just to get reinfected and go right back where you started or worse. Honestly, I'm not scared of dying from COVID. I'm scared of living for a long time, suffering from Long COVID the entire time. This isn't living.
I don't know how to end this now. I'm still fighting, I'm trying experimental treatments, I'm not giving up yet. I hope everyone reading this stays healthy and well.
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hoshiyoshis · 11 hours
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if u ever make fun of a girl for her broad shoulders u deserve to be hunted for sport with a nail gun
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hoshiyoshis · 11 hours
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buff man bracket for who would give the best hugs
also know i dont know some of these men so if theyve done shitty things i have literally 0 idea im just gathering names
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i still need to add more (also my cap is 2 per group) but current running list of men. send me more men with buff arms who can arm wrestle my problems into oblivion
kpop buff man bracket.
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hoshiyoshis · 12 hours
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has anybody seen my pet piece of paper. his name is walter he is very fragile but very adventurous. i should never have left the window open in my tenth story apartment
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hoshiyoshis · 12 hours
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just saw a single piece of paper drift past 50 feet in the air over buildings like a beautiful white bird
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hoshiyoshis · 12 hours
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i went to log in to my patient portal bc i need to schedule my annual sometime soon and the website was going thru it. its up now but i just watched it redirect me like 8 different times and im like its ok take ur time
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hoshiyoshis · 12 hours
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unsung benefit i think a lot of ppl are sleeping on with using the public library is that i think its a great replacement for the dopamine hit some ppl get from online shopping. it kind of fills that niche of reserving something that you then get to anticipate the arrival of and enjoy when it arrives, but without like, the waste and the money.
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hoshiyoshis · 13 hours
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"the early 2010s were better" no they weren't. "hey soul sister" was on the radio.
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hoshiyoshis · 13 hours
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kpop buff man bracket.
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hoshiyoshis · 13 hours
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idc what other ppl think i love when buff men have softer tummies bc u can tell theyre hydrated n taking care of themselves!!! maybe im just getting old or something but abs are nice sometimes ig but i personally just get worried when theyre super defined :(
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hoshiyoshis · 13 hours
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i'm fine i'm totally fine this is fine
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hoshiyoshis · 13 hours
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wheres tht one wonho gifset i think abt a lot hold on
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hoshiyoshis · 13 hours
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WONHO | 원호 2022 | Calvin Klein
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hoshiyoshis · 14 hours
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tbh i dont even know if i want to support the comeback at all at this point. like, i understand the WHY behind the AI usage but its genuinely feels like a spit in the face moment ig? i know we don’t know the exacts of how the mv was put together but real artists deserve work and could have made an mv that looks good. put a disclaimer if ur so worried and say that the AI segments are representative of shit.
like idk its just hard to have support for this
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hoshiyoshis · 15 hours
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above all else a trans woman is a person. above all else a trans women is a woman who goes to the same grocery store as you and buys fruits in the same grocery cart as you and goes home and eats her dinner the same as you. above all else a trans woman is a woman who dresses like you do and talks the same way you do. above all else a trans woman is a woman who wants to be cared about the same way you want to be cared about and a trans woman is a woman who makes friends the same way you make friends. above all else you should care about trans women because they are people. treat her as such.
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hoshiyoshis · 15 hours
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hoshiyoshis · 15 hours
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