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Meet my inside.

Princess. 👑- open relationship - Stone Femme sub Lesbian 🏳️‍🌈 30. MEN DNI! Autism and disabled. Anxious Asocial Ambiamorous IG: MileyMirror

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hell-is-a-teenage-girll · 2 days

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When you do stuff with an invisible illness people often say oh but you can still do things?

Ofcourse I only post of the days I do something. Which is maybe every few weeks or months. Because yes disabled people deserve to do things.

What you don't see:

How long it takes for me to recover.

How I can't have strength to wash my hair for over a week.

How I cannot clean the house.

How I have to cancel everything because everything hurts and I fall sleep on the spot.

How I cry of pain.

How I have to watch everyone around me do stuff, while I'm stuck in the house.

How long it takes to prepare to go do something and how much planning in advance so I can take enough rest to hopefully be able to go.

How I need a wheelchair in parks to not have to much pain afterwards and not having to cut the day short for everyone else cause I can't walk anymore.

It may seem amazing to some to be home all the time or lazy. Trust me, it's not fun. You just sit there, wondering what to do with yourself, it's just you and your pain. It can be incredibly lonely.

So yeah, you see me do stuff indeed. You don't see the before and afters.

Don't we all wanna show our best sides on social media? So yeah so do disabled people.

Think twice before you comment on how a disabled person decides to spend one of their good days.

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hell-is-a-teenage-girll · 2 days

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HEALTH UPDATE

I thought I'd explain more about what I have now together with the trigeminal neuralgia.

Or better said, what I got on top of it because of a medical 'mistake/damage' they did and pretend to not know what it is. I went to another neurologist one time with the complainss about how I am suffering after what they did and immediately got diagnosed.

I am copy pasting this here from an article because it'll be more clear then anything I can say:

What is anesthesia dolorosa?

Anesthesia dolorosa (AD) is a feeling of pain in an area that is completely numb to the touch. “Anesthesia dolorosa” literally means “painful numbness”. Numbness describes a loss of sensation or feeling in a part of your body, but it is often accompanied by or combined with other changes in sensation.

AD causes pain in one or more areas of the face which are completely numb to touch. The pain is described at constant, burning, aching, squeezing, heaviness, tightness, pressure or likened to pins and needles. The primary pain is usually continuous or near-continuous. You may also experience brief bursts of pain, but these are not typically the predominant pain type. Diagnosis is generally based on the description of symptoms.

AD occurs when the trigeminal nerve is damaged so that the sense of touch is diminished or eliminated while a malfunctioning sensation of pain is left intact. AD is caused by nerve damage, either from an underlying condition, traumatic injury, or from past treatment of the trigeminal nerves. AD is referred to as a deafferentation pain syndrome, meaning that it results from complete or partial interruption of nerve impulses.

Anesthesia dolorosa and trigeminal neuralgia

AD pain is usually constant with a burning or jabbing quality, while trigeminal neuralgia (TN) is intermittent, with sharp, electric-like jabs. The distinction between the two can affect the course of treatment. Further destructive procedures for an AD patient may make the condition worse.

Treatments

Unfortunately, there is no known effective treatment for AD. A multidisciplinary, pain-management-oriented approach is most appropriate. Some helpful strategies include anticonvulsants, antidepressants, opiates, psychological support, and complementary and alternative therapies. There are no good surgical options at this point, but motor cortex stimulation has shown some promise in preliminary studies.

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hell-is-a-teenage-girll · 2 days

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I’m disabled too. May I ask what you have?

Hey there!

Yes you can, personally I don't have issues with speaking about it so no problem

Be prepared for the list haha I always say my body just wasn't meant to be a body 😂 (at least I can laugh with it at times)

I have been chronically ill since 16, ever since I had Mono I basically never got better.

I have a muscle illness, chronic fatigue syndrome, I have a still unknown condition that gives me attacks in my legs which makes them move in uncontrollable movements and if I don't hold myself in time I fall. Some small other things that come with all this but not worth going into I think unless you like to

But the worst I have is my Trigeminal neuralgia and anesthesia dolorosa.

Trigeminal neuralgia is also called the suicide disease, and it's exactly for the reason of the name, most people who have it commit suicide cause the pain is one of the worst kind to humans and is barely controlable. The anesthesia dolorosa I got through malpractice of them trying to work on the trigeminal nerve and they damaged it which now left me with permanent damage and 24/7 pain which I am still trying to live with.

Sorry for the long text if you wanna know more you can always ask, I don't mind talking about it ❤️

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hell-is-a-teenage-girll · 2 days

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hell-is-a-teenage-girll · 2 days

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Thought I'd show y'all my night face. It's been a while. So yeah this is the current state I'm in ✨

and then there's my cat becoming a demon.

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hell-is-a-teenage-girll · 2 days

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I told all the crows about what you did btw. Good luck next time you’re in the forrest

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hell-is-a-teenage-girll · 2 days

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