chronically-weak
Chronically Weak
Chronic Illnesses Suck!
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Informática 1
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I remember spending Halloween, Thanksgiving and Christmas in the hospital.
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You know you're a spoonie when you become the family pharmacy in emergencies.
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Sometimes i find myself putting off taking pain killers usually with the mental reasoning that I'm not in a really really high amount of pain so I dont need it yet.
This is a reminder to myself and anyone out there that needs it that you dont have to wait to be in a really high amount of pain before you take pain relief or do things that will make you feel better.
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Every night I go to sleep to recover from the day, and every morning I sit in my bed for at least a couple of hours to recover from sleeping.
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Anyone else with chronic health issues that almost wish they didn't have "honeymoon" periods where they have barely any symptoms or are barely in pain?
As when the "honeymoon" period comes to an inevitable end you feel as though you'll never get back to that point again and that you took that time of being symptom and pain free for granted? xx
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Being chronically ill is lonely, painful, and one of the worst kinds of existences there is.
Dying with no death.
Living with no life.
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Watch "Why Don't We Care About Disabled People?" on YouTube
youtube
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SPOONIE THINGS NO ONE TALKS ABOUT PART 10
Being social awkward
Because your illness leaves you isolated for weeks on end, socializing is rare, and therefore is not well executed when it does come.
When you finally get a chance to hang out with your friends or loved ones it's like you've never met another human before.
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friendly reminder that if you have a hard time eating due to nausea or other chronic illness ickies, just eat what you can eat. even if it’s not particularly “healthy,” getting calories in your body to help it function is more important.
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SPOONIE THINGS NO ONE TALKS ABOUT PART 9
How difficult it is to keep from snapping at loved ones.
When your body is screaming at you, your mind is foggy and slow, your every joint in seemingly endless pain, your filter becomes thin. Your pain is so great that it spills into your words, making them sharp as the pain you're experiencing.
And you hate yourself for it.
But what can you do?
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Just your regular reminder with prime day that yes Jeff Bezos is the devil but Amazon is often the only option for many people especially disabled people or people without a lot of money. Don't shame people for using what they can to access what they need because you're privileged enough to be able to use ethical alternatives.
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me, going up stairs: oh this is worse than going down stairs
me, going down stairs: oh this is worse than going up stairs
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If you are American, PLEASE SUPPORT THE SSI RESTORATION ACT OF 2021
This new bill has been introduced in both the house and the Senate.
Among other things, it will:
Raise the monthly disability income by just over 30 percent - bringing it to poverty level.
Remove penalties for recieving financial help from friends and family.
Increase the amount of assets a disabled person may have from $2,000 to $10,000 (this hasn't been updated since 1989)
Update outside income restrictions to allow disabled people to receive up to $399 a month without reducing their benefits.
REWARD, not penalize, people who want to receive additional income while on social security income.
REMOVE THE MARRIAGE BAN YES YOU READ THAT RIGHT THIS WILL REMOVE THE MARRIAGE BAN
For those unaware current regulations do a lot to oppress disabled people. In fact marriage equality doesn't even extend to disbled people who risk having their benefits reduced or outright taken away if they marry someone. This means that in common law states disabled people can't even live with their significant other or they risk losing their financial independence.
Current regulations mean that if you're disbled you can't have so much as one penny over $2,000 to your name. So buying a car and gaining more independence or freedom is largely out of the question for disabled people.
Current regulations penalize social security recipients who receive income from outside sources, even if those sources are reimbursement. Did you get paid to babysit for a few hours? That's income, and you get your benefits reduced. Did you loan a friend $10 and they pay you back? The government considers that $10 income, and you get your benefits reduced.
These aren't mere anecdotes - these are all examples of actual things that have happened to disbled people I know, and if you have any disabled friends in your life I'm sure they can tell you the same stories.
If you value marriage equality, if you value financial independence, if you value the rights of disbled people, please PLEASE support this bill! Contact your reps, vote, and make noise! This is a great thing!
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Even with a Severe Lung Condition, You Can Safely Wear a Mask
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