Trying to explain this to people as well is so hard. Like, I'd really love to meet up and I guess we can make plans to meet up at some future point but I might have to cancel day of because I can barely make it from my bed to the kitchen, sorry if that makes me a flake??
Maybe the unpredictability of being chronically ill is why I like to be hyperorganised - it gives me the illusion of being in control of my life...
I think the scariest thing about having a chronic illness is you truly don’t know what you’re going to feel like from one day to the next.
Yesterday I was able to shower and stand up for more than 10 minutes and today breathing is hard.
The unpredictability and the sheer fear of having to deal with flare ups and feeling like everything is falling apart constantly.
I am tired.
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Oh my god 😂😂 I wish I'd had this when I was writing about Ophelia's visual representation for my doctorate. (Although I am delighted to say that a pig Ophelia à la Millais did make it in.)
Roasted chicken, ginger, daikon, shiitake mushroom soup with lime, cilantro, broccoli sprouts, and rice noodles
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Me, when I'm busy and have to do something I don't like: Godamnit, I could have been writing.
Me, when I actually have the free time to write: Yeah, now is the time to everything but that.
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