Just realized 4月は君の嘘 and 3月のライオン are two different mangas and you know what, I feel justified that I confused them
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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*in tears* february will be my month!!!!!!!
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Not a day goes by where I do not think about the advent of medicine like PrEP and wonder just what the people - especially queer people - who passed from HIV/AIDs during the AIDs crisis would think
And then, I read this survivor's testimony and it just makes me emotional. I think this is the closest answer we have. HIV has changed, and we must always remember the people who didn't see that change before it happened.
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Robin and Steve playing a dnd character together because Steve said the only way he'd play is literally with Robin. They take turns each session for who speaks but always planning together. It's a teenage human, gangly and uncoordinated and a bit of a loner. Everyone sort of lets the "two people playing one character" issue slide, as they want to play a game with their friends.
Robin and Steve have wildly different character voices, and sometimes announce which way they are walking before stumbling in that direction, and also mutter to themself in character. when it's Steve's sessions to talk he flits with the NPCs Eddie plays, but Robin is just a little aggressive to them. The personality changes are kinda weird but everyone is just happy they're playing.
Everything is going well until the big bad of the short campaign they're all playing knocks them into a wall. Not hard, but hard enough they're scrambling and flailing and...splitting in half. By their own description. Immediately they start, with their respective character voices (they are committing to this bit) bickering about whose fault it is. And about what they should do now their cover is blown.
The table is silent.
Robin and Steve have been conning everyone the entire time. They're playing twin halflings, who alternated who sat on each other's shoulders pretending to be a human because they were goofing off the day they joined the party and were too embarrassed by the mix up to correct anyone about it until they had to. Their voices and personality changes are brilliantly embedded as not Robin and Steve not being able to keep consistent, it's because they've been playing different characters. It's brilliant. It's horrible. Everyone fell for it and the reveal essentially pauses play because everyone starts yelling at them.
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do the silly thing. if you do not do the silly thing time will pass and it will not be the same silly thing it could have been. it will still be silly, and it will still be yours, but it will not be the same. this is both a blessing and a curse, but so is living; and if you do not do it now when will you? who will? it has to be you, it was always meant for you, waiting for you.
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