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#spoonie support
4spooniesupport · 7 months
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A real, unbutchered pain scale.
Based on this, my base level of pain is a 7. Sounds pretty accurate
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justseveralowls · 2 years
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Reminder to my fellow spoonie/ disabled humans
-your mobility aids are not ruining you aesthetic
-your conditions do not make you a burden
-you are allowed to be angry
- you are allowed to grieve
- you are alllowed to seek joy
-you are allowed to make your life easier
-Your assistive devices are not weird or ugly they help you live and experience the world
-You are lovable
-you are valued
-Struggling or having flare ups is not a failure
- You dont need to explain yourself to anyone
- Your succeses are amazing even if they dont happen in the typical form or on a certain timeline
- You are allowed to take up space
- You dont have to be productive or inspiring 
- You aren’t alone
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my-brain-is-soup · 2 years
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thespoonienet · 2 years
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my tiktok account was permanently banned in what is likely a move of disability suppression
My account @valeriesvoice was banned from TikTok two nights ago citing “multiple community guidelines violations” when I have had none. This is a continual pattern with TikTok and disabled creators, and I’m heartbroken that I’ve lost the platform and community of 61,000+ folks where I felt I could talk candidly about my illnesses and experiences. 
If you wouldn't mind taking a minute to email TikTok using this template to help me get my account back, I would really appreciate it!!
You can also fill out a form here: https://www.tiktok.com/legal/report/feedback or report in the app.
Thank you thank you, and please spread to anyone who would be willing to help! 
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800-dick-pics · 2 months
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Support my Service Dog in Training!!!
This is my 10 week old great dane mix SDiT! This big boy has a necessary vet appointment this week and next week for his puppy vaccines. We also need to get him puppy socialization classes, training tools and gear as he grows. Please support us on our journey to becoming a service dog team!
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CA: $sleepyhen
VN: wildwotko
DM 4 P@ypal
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crazycatsiren · 1 year
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There are disabled people who can't brush their teeth, wash their faces, brush their hair everyday. Who can't shower often. Who don't always have clean clothes to wear because they can't keep up with laundry. They deserve respect and support.
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neuroticboyfriend · 1 year
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hi you! here's your daily/nightly reminder that:
your voice should be heard.
your health is important.
your pain is not insignificant or lesser than others'.
you are not on this earth to be "productive."
you are the only one who can define your experiences.
you are cared for, even if only by strangers. we care.
now go stretch, hydrate, nourish, and lay down (if you can). just do your best, and don't worry if other's think it isn't enough. it is, and im proud of you.
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spacedocmom · 7 months
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Doctor Beverly Crusher @SpaceDocMom You're allowed to be angry at your disabilities and/or illnesses. You don't have to be, but you're allowed to be. Never let anybody police your emotions about your health. I'm here for you to support however you feel about all of it in any given moment. emojis: black heart, blue heart, masked 1:10 PM · Sep 4, 2023
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alex2xander · 15 days
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Shout out to all the tumblr users dealing with daily fatigue and severe depression.
Respect to those who have medium and high support needs who need assistance with bodily functions.
Love to those who cannot safely leave their bedrooms or home due to the pandemic and lack of societal support.
Care to those who spend the majority of their life online because this is the only way they can socialize with the outside world
There are so many of us trying to make it day to day. I love you and you're not alone in this.
I love you people who have to be carried, lifted, or escorted in mobility aids to do daily living tasks
I love you people who depend entirely on your cariers and personal aids for every function
I love you people who haven't been able to shower in over a week and therefore have tangled or matted hair and body odour
I love you people who have been wearing the same clothes for over a week
I love you people who dont have the energy to get out of bed to use the bathroom and need to use diapers or a bed pan
I love you people who havent been able to cook their own meal in months
I love you people who have piles of dirty clothes and trash scattered around their room
I love you people who uncontrollably drool on yourself and your property
I love you people who have slowly lost mobility and function over time and are adjusting to their new life
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lil-gremlin-gal · 7 months
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People when you say you have chronic fatigue: "We're ALL tired, sweetie!! That's just life!! Haha!!"
Meanwhile I just said, out loud, to my partner: "I'd love to be eating, but I just don't have that kind of energy" 🙃
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pyjamacryptid · 6 months
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me surrounded by all of my medical paperwork that disability services deems “not enough evidence” to claim support, after applying for the 5th time:
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4spooniesupport · 7 months
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justseveralowls · 2 years
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Message of the day:
You do not need to be beautiful to justify your existence, you do not need to productive to justify your existence, you do not need to be useful to justify your existence. You are allowed to just be, you deserve to take up space and experience the world, no strings attached.
You are valuable just as you are in this moment, and you always have been, you do not need to prove your worth or perform a role to exist in this world. You are you, you are human, and that is enough.
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my-brain-is-soup · 2 years
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It certainly does feel that way some days.
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blackholemojis · 2 months
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request: text saying "need care" or "need caregiver" :]
You got it :) I also included one that just says “caregiver,” since I hadn’t made one yet
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[ID: purple light mode word emojis reading:
caregiver
need care
need caregiver. /End ID]
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[ID: purple dark mode word emojis reading:
caregiver
need care
need caregiver. /End ID]
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REQUESTING MUTUAL AID
Black queer disabled DID system in need of assistance getting necessary medications.
Current goal: $500
Any and all assistance is appreciated. Includes sharing even if you can't donate. Thank you for your time <3
CashApp: $11km5
PayPal: 11kem5
Venmo: kem115
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