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#self diagnosers
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When I mentioned my (apparently hot) take that I believe self-diagnosed people are valid, I got a handful of (my first!!!) hate comments.
So I thought I'd elaborate.
People who are self-diagnosed with anything might just end up being default settings. That's okay. What's not okay is denying someone aid on the basis that they don't have a diagnosis.
I always carry earplugs because a bunch of my friends have auditory sensory issues. None of them are diagnosed with anything, but I've helped them through panic attacks nonetheless.
If a stranger came up to me at a loud event and, seeing I have earplugs, asked for a pair, I wouldn't hesitate to give them. Don't bother giving them back, I buy in bulk.
Maybe that person was a neurotypical with sensitive ears, or maybe they were an autistic person with auditory sensory issues. I'll never know. But if my response was, "Do you have autism?" that would just make me a jerk. If their response was "Yes," and I then demanded paperwork as proof of their autism and therefore eligibility for ear plugs? That would mean I'm violating their privacy.
One of my friends had a panic attack at a loud event where she was working, and someone took her shift without question when they asked if she was okay and she said she wasn't. That's being a cool person. Saying "Well, you're not diagnosed with autism," and refusing to help her on that basis while she is clearly in distress is not cool. Even if she is neurotypical, anyone in distress merits help. Just because someone can swim doesn't mean they need breaks to keep from drowning, and refusing them a lifesaver on those grounds is just being a jerk, especially if there's no one else who could use the metaphorical lifesaver.
One of the main reasons I'm pursuing being a psychiatrist is so I can give my friends the diagnoses that I know would make their lives easier. I have the privilege to be diagnosed. They do not. I want to help give people free therapy and diagnoses since, at least in the United States, money is a huge barrier keeping people from diagnoses.
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purpleflameb0i · 8 months
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I cannot stress how important getting a diagnosis is for any mental disorder/disability (for anyone who needs it/wants it). And I also cannot stress how much of a privilege it is for people to get an official diagnosis. Self diagnosis is valid. Sincerely, a professionally diagnosed autistic person.
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shadowsbrainrot · 1 year
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i hate the anti self diagnosis crowd bc it’s so counterproductive and has so little nuance abt how disability intersects w ppl who are already marginalized outside of it. So many ppl either don’t have access to or are not taken seriously by doctors because of misogyny, systemic racism and poverty, sometimes there’s just nothing a person can do than wait indefinitely on a waitlist when their healthcare system isn’t stellar or they don’t have access to anything better. The one thing self dx does is give ppl a community where they can find self help and a sense of belonging w ppl who share their struggle and ik from experience my journey was a lot lonelier and scarier when i was too scared to interact w other neurodivergent ppl on the internet when i was afraid to speak about my chronic pain or my experience as the host of a system, when i was bottling all these things up. nobody can tell you your experience except for yourself and trying to police and undermine ppl who are only searching for answers or a sense of community and belonging is not only stupid but cruel.
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ambientbroth · 1 year
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First poll :) repost are welcomed!
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I am personally 100% for a shitty self diagnosis.
A shitty self diagnosis is usually the predecessor to a fairly accurate self diagnosis.
For me, I didn't think I could possibly have autism because of the stereotypical traits listed (I first started researching in 2013 when most sources were based on children, and not relatable at all to a teenager). So I actually thought I must be bipolar! That was a shitty self diagnosis, but it then later on led to a self diagnosis of autism, which has now become a professional diagnosis of autism.
I honestly hate that there is any dislike to self diagnosis at all... to me it doesn't make sense. Unless you suspect something is "wrong" with you, it's very unlikely you'll just happen to end up in front a psychiatrist or psychologist getting diagnosed. And even if you do it's much less likely that they'll diagnose you with autism unless you have already self diagnosed it.
Lets say someone self diagnoses autism without learning much about it. They just saw a few tiktoks that resonated with them and they went for it.
Here's my thought process.
They are going to continue learning about autism, great!
This means if they don't have autism, they will likely become a lot more empathetic to people with autism. That's awesome!
If they do have autism, that's great too! Another correct self diagnosis, yippee! (This is the more likely outcome BTW! It's fairly uncommon for people to think they are autistic for no reason...)
Or the third outcome is, self diagnosing with autism wasn't correct, but it lead to a correct self diagnosis of ADHD or something else. Great for them!
Here's a second scenario. Someone does a shitty autism self diagnosis. They then see a bunch of posts and comments about how you need to really deeply and responsibly research autism for your self diagnosis to be valid. Or even a bunch of people directly comment that to them.
Then here's my thought process with that scenario.
The person is actually autistic but gets scared out of self diagnosing because they worry they can never research enough. They become indecisive and it takes them much much longer to be able to self diagnose because of fear and gate-keeping.
The person isn't autistic and feels discouraged from doing research towards any self diagnosis. They feel isolated and misunderstood. They get upset that they have been rejected by yet another community.
Now, listen. I know that for us autistic people it can feel like we are being attacked on all sides and that bad self diagnosis is just another way we are being misunderstood. But the thing is, from my POV, professional diagnosis is honestly not much better. At all. Doctors have trouble correctly diagnosing physical conditions, let alone mental ones. Most doctors I've been too couldn't even diagnose a rash. It's honestly sad how useless they can be sometimes.
A self diagnosis is key to finding your correct diagnosis also. Without self diagnosis many people won't have ANY diagnosis ever.
A lot of people with a shitty self diagnosis are also often teens. Lost, confused, misunderstood teenagers. And people who self-diagnose mental conditions are often neurodivergent in one way or another. Whether it be autism, ADHD, depression, we should be accepting them all the same. We are all fighting very similar fights.
Now for my big POV - we can't actually truly determine whether someone has an accurate self diagnosis. We are autistic people, but we can't diagnose other autistics. Pretending that we can is a dangerous game to play. Autism can present extremely differently person-to-person. It's important that we don't forget that.
Basically, I understand that it feel frustrating seeing so many people self diagnosis with autism without much research. But please, even if you disagree with me, at least remember to be KIND.
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sappy-sabbath · 16 days
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as a society can we stop making mental illness/neurodivergency trendy and romanticized. i know more mf who faked claim than ppl who actually had the condition. at the end it just makes the people who are diagnosed with the condition the butt of the joke or look disingenuous.
ALSO IF I MAY be real for a sec!!! it’s because of the “destigmatizing XYZ 🥺” tiktoks and self diagnosing that make this happen, i know they are good intent and not all people have resources but its one thing to be concerned about your mental health and another to claim to have a disorder that you haven’t been diagnosed with!
autism, ADHD, schizophrenia, BPD, bipolar disorder, psychosis, OCD have all became quirks than serious debilitating condition and as someone with ADHD and psychotic depression IM SICK OF ITTTT, it’s different with things like depression and anxiety bc you experience that at least once in your life but it’s getting out of hand
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wolvierinez · 3 months
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honestly i feel like with the rise of anti self diagnosis especially in psychiatric fields its harder for anyone to actually get a diagnosis. meaning more people are gonna self diagnose. im scared im gonna go in for an autism assessment and get written off for it because im aware of my own symptoms that ive been living with my whole life, despite a number of professionals agreeing im likely autistic. like. it wont matter whether or not i am, some people are just spreading misinformation on tiktok and since im not a 5 year old white boy who doesnt even know what autism is i have to be faking.
dont start discourse with this. ill just make fun of you in private and block you. (<-pre-emptive)
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im-enoch · 1 year
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don't diagnose each other with serious mental illnesses on the internet, kids
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amyyythestarry · 9 months
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For ND People ( also people who think they are neurodivergent )
Isn’t it weird to just have this feeling that your autistic/have adhd/ect and try to look back on when you were younger and try to spot any moments when you acted that way but can’t find any because your memory is terrible. And your parents don’t know you feel this way so you just can’t ask them if you’ve ever acted like this in the past. So now you’re unsure if your nd again but then look back on feed from nd people and see they feel the same way/have felt the same way.
Like huh???
Also run off sentences while trying to explain something in text is a must. It’s satisfying. But shorter when you read it right?
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pebiejeebies · 3 months
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Am I the only one who used to eat the Oreo in this one specific way??
So like, Oreos.. (I’m boycotting them btw dw,, this is the past)
The cookie itself was always my favorite part, I’d like, scrape off the Creme as much as I could, and eat it first, then and only then will I eat the cookie itself
I hated the texture of both of them together, and I hated the mixed taste I got from both, I always loved to eat them like that and I always wondered how people would just.. eat it yk?
Like I get it if you like dunking it in milk or smth but like.. YOU DONT REMOVE THE CRÈME FROM THE COOKIE?! WHUH???!!
Oh, did I mention that I do this FOR THE WHOLE PACK, eat ALL THE CREME, THEN I will eat every cookie
I don’t eat them in bunches either, I take one cookie and take small bites cause that shit is too good to eat it whole, I take bite by bite until I finish this cookie, then onto the next one
If you give me anything similar to Oreos (I REFUSE to eat anything from that horrid company, and anything that supports israel in any fucking way)
Do not expect me to eat it like a “normal person” 😇
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jelicoxoxo · 6 months
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I find it odd how people are really critical about autistic people NOT getting diagnosed or choosing self diagnosis over professional, especially in a society/economy that does NOT like us.
If you don’t want a diagnosis, thats fine. if you do, thats also fine. stop letting (most commonly privileged) people who can only think of their personal situation tell you what’s best for you.
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ametistapp · 3 months
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A reminder to all the self-diagnosed neurodivergents out there: the people who tell you you're not "qualified enough" to know what you have are themselves not qualified enough to say you don't have it.
You know yourself more than anyone else ever will.
If you do your research and don't immediately jump into conclusions, your self-diagnose is valid.
You're not harming anyone with it, so don't listen to assholes saying you're taking something away from "actual neurodivergents".
You're not taking anything away from anyone.
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nutria--oscura · 15 days
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On this day in neurodiversity acceptance month I want to remind all self diagnosed neurodiverse people that:
Your self diagnosis? Valid.
You? Valid.
Me? Proud as fuck of you
Always remember that <3
Until we meet again!
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ambientbroth · 2 years
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Gatekeeping culture is like: “don’t get your information online it’s too easy😡!!!” Then offer “find research papers online it’s really easy🙄”
Then block you.
Self diagnosing isn’t TikTok videos and random blogs. It’s literally months to years of research. There’s a lot of reasons why someone can’t get professionally diagnosed.
Misdiagnoses happen a lot
People aren’t taken seriously
It’s expensive asf
Its inaccessible
People want to adopt
People want the right to their bodily autonomy
I’m disappointed when I go online and see my bullies are now nurses. That’s kinda the same thing when I go on here and see professionally diagnosed people who shit on undiagnosed for posting coping mechanisms.
Stop calling people “the problem” for coping. The real issue is people who post any “if you have these… you might have” THATS DANGEROUS. what isn’t dangerous is:
Finding coping mechanisms
Find organization tools to function
Therapy
Talking about experiences
Researching extensively on traits
Documenting
Unmasking
Printing off quizzes or research articles from well established resources (Embracing Autism, ASAN, AIM, awn network, A4A)
Stimming (if it isn’t harming)
Advocating for diagnosis is one thing. Being a bully online is another. It’s a disability not a quirk, a lot of self diagnosed people know it’s a disability. We can identify the actual problems in the self diagnosing community but a lot of us aren’t those.
We’re valid
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valiant-shadow · 1 year
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Something to remember about self diagnosis is that, yes, it can be wrong, but SO CAN professional diagnoses. I wasn't diagnosed with DID until TEN years of therapy had occurred. My past therapist told me I probably had schizophrenia - despite my only psychotic symptom being "voices" - and told me to get ANOTHER psych evaluation done. I wasn't diagnosed with Bipolar until years into psychoanalytic treatment. I have never been officially diagnosed with Autism, but I WAS diagnosed with "ADHD and sensory processing disorder" which has a LOT of overlap with Autism.
How did I discover my DID? My Autism? By talking to systems and Autistic people. By taking in Autistic and DID media. By doing my own research. By first self diagnosing.
So if you fear that you'll get it wrong...maybe you will. Or maybe medical professionals will have to play catch up with what you already knew.
And if you are wrong? So what if writing sticky notes to yourself is a DID coping measure?? Use it! Make trackers for dopamine like your ADHD friends! Get Loop headphones or the like, so your Autistic-suspected self can cope with noises!
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theoraclesystem · 1 month
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My stance on self diagnosing - 🔪
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