shout out to when i told my dad about goncharov and he figured out it was fake because i told him "1973 martin scorsese film with robert de niro" and he said that wasn't possible because the godfather came out in 1972 and the godfather part II came out in 1974 and they wouldn't have had time to make a movie in between. a perfectly good jest, foiled by this man's weird and vast knowledge set
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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Not a day goes by where I do not think about the advent of medicine like PrEP and wonder just what the people - especially queer people - who passed from HIV/AIDs during the AIDs crisis would think
And then, I read this survivor's testimony and it just makes me emotional. I think this is the closest answer we have. HIV has changed, and we must always remember the people who didn't see that change before it happened.
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this disability pride month, stop making jokes about people in wheelchairs standing up or walking.
can I stand and walk? sure, for a short while and with pain. the consequences for trying to be out all day without a wheelchair are that I'll be in bed for the rest of the week, too tired and in too much pain to move.
but the government won't give me my own wheelchair because they have the same attitude as these jokes - I can stand up, so I don't need one. exercise is good for you, you should walk!
it keeps me trapped in the house, unable to do anything more than short stints anywhere without borrowing or hiring a wheelchair - one that causes me pain to sit in and relies on someone to push me (usually with difficulty), because they're not going to have a high-end chair for that sort of thing.
it's not a miracle that a wheelchair user can stand or walk. it's something we should aspire to see more often.
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Happy disability pride to everyone whose disability makes it hard/impossible for them to leave the house.
Happy disability pride to everyone who WANTS to do something they love, but can't because of their disability.
Happy disability pride to everyone who has ever been ignored, side-eyed or scoffed at (or otherwise judged) for being themselves in public.
Happy disability pride to people in constant pain, that doesn't end or break.
Happy disability pride to people who can't/don't want an official diagnosis because it would fuck up their lives, but they need the accommodations anyway.
Happy disability pride to people who did get/have gotten/had to get a diagnosis, because they needed what came from it.
Happy disability pride to the under-represented disabilities that people don't talk about much, or that get ignored both online and IRL.
Happy disability pride to those whose disabilities get represented in ways that do not match your experience at all.
Happy disability pride to the physically and mentally disabled people who are reading this. If you are one, the other, or (more often) both, you are still a valid person who faces discrimination and hardship from ableists, and we must all band together to vouch for our rights- ALL of our rights.
Happy disability pride to all of you, I love you all, and may we get through this month, and all the rest, together.
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