Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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I can’t believe I went through all of Season 2 assuming Nina was the stand-in for Crowley when you actually pay attention it’s so CLEAR that she’s Aziraphale. I was tricked by her spiky, sarcastic, cynical outer shell and lulled into a false sense of security by Maggie’s bubbly optimism and wholesome goodness, because on the surface they reflect the ineffable husbands perfectly, in their personalities, their aesthetics, even many of their actions and morals. but not, and this is the real key, when it comes to their “relationship”. but those first impressions really had me damn fooled.
I missed the blatantness of Nina’s “we’re just friends. actually we’re not friends. we barely know each other.” the same thing Aziraphale said in season 1. the way he still struggles to quantify their friendship when Nina asks. Nina’s sarcasm when Crowley asks about rain and awnings because it worked for him (we all know it LMAO). hell, that whole convo the girls have in the rain is so AziraCrow (“I know. I’m not your type” “...You have no idea” hits so much harder the second time, help meeeee.) “Lindsay” maybe being symbolic of Heaven and Aziraphale’s toxic relationship with them and their abuse? (the handwritten text messages in red pen make me think of angry notes on paperwork, anyone else?) because Crowley has never actually cared about what Hell thinks of him, just not getting into trouble (or him or Aziraphale getting hurt). Maggie is always chasing Nina. NINA NEVER GOES IN THE RECORD STORE. Just like Crowley always goes to the bookstore, to Aziraphale, Zira NEVER WENT TO THE FLAT (apart from The Swap but that doesn’t count imo). Crowley has always chased Zira, not the other way around. Always there to rescue him, always going to him for company, always relying on their shared connection, always US. OUR SIDE. All through season one, he comes to Zira every time to work together, never trying to work alongside Hell in any way that isn’t to save their skins or Earth, while Zira hides things from Crowley because he STILL thinks Heaven is ultimately good and will do the right thing if he can just show them. fix it from the inside.
Maggie working up the courage to finally say something, to put herself out there, while Nina is utterly oblivious and then when she does realise Maggie has feelings, becoming standoffish, putting up that barrier, fighting it, denying it, ITS SO CROWLEY AND AZIRAPHALE IN THAT ORDER. the way I was fooled into thinking Nina’s trust issues are Crowley because he does have trust issues ofc he does BUT Crowley has ALWAYS TRUSTED AZIRAPHALE. has always relied on him. has always been hurt when Aziraphale doesn’t immediately reciprocate the way he expects (the holy water request, the bandstand, the “off in the stars” etc). he’s always the one putting himself forward. Aziraphale has always been the one to second guess everything, to fight their connection, their similarities, their friendship. the girls really made me think it was going to be okay when they sat Crowley down, even as my inner sirens were going haywire about Metatron interfering, they were telling Crowley he just needs to open up and it’ll all work out BUT HE’S ALREADY AT THAT POINT. he may not say it, and by gosh is that part of their damn problem, but he’s always SHOWN IT. he’s not Nina who needs time to heal and recover from her broken trust, he’s always been Maggie believing it doesn’t matter, they’ll end up together in the end anyway AND I WALKED RIGHT INTO THE TRAP THAT THIS MEANT THEY WERE GOING TO BE OKAYYYYYYYYYYY
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saw a post the other day that said that psych survivors were overexaggerating and fearmongering for saying that people should be aware that having diagnoses on your record can be a danger + impede your life. and the more i think about it the more annoyed i am. because i think people need to know that there are exceptions to health privacy laws that can make having psych diagnoses and psych hospitalization history on your record risky depending on your circumstances. diagnoses follow you through your health interactions-you do not have to consent to have your information shared between providers. judicial proceedings are also an exception to the HIPAA privacy rule, so for things like custody battles, guardianship, getting orders of protection--the court can petition for medical records. there's so many other situations where even if they can't legally access your information without your authorization, people will require you to disclose diagnoses, records, previous hospitalizations and refuse to give you services/hire you/whatever unless you share that information with them. for example in many states anyone (a provider, a cop, friends and family) can disclose that you have certain psych diagnoses like bipolar to the DMV which then might require that you undergo drivers license review as frequently as every 3 months. my university is actively trying to kick me out right now because i had to disclose my medical record, psych diagnoses, and hospitalization history to them as a requirement to stay enrolled.
and i don't want to scare people or make people think that having a diagnosis on their records is automatically going to mean that it is weaponized against us. because i do know plenty of people who have never faced issues with their records. but i do expect that the community supports the people speaking out about the ways that we have been harmed by diagnoses creating barriers to accessing necessary parts of our life. instead of attacking us or saying that we're lying about things we are currently experiencing.
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The defintion of hell is knowing a show is incredibly well-received in its first season, but if people don’t become machines churning out tweets, content, and rewatching 24/7, there’s no likelihood it’ll get a chance to tell its whole story. This shit is madness. Shows in different genres shouldn’t have to pit-battle for dominance. First seasons are MEANT to be baselines establishing worlds and characters, not complete storylines. The idea that this golden age of television has turned into “get it done in one or get out” is revolting.
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getting older can be so amazing? you get more familiar with yourself. learn tips & tricks for troubleshooting your own brain. trial & error helps you build routines that minimize discomfort, maximize reward. your preferences/interests don't get set in stone, but you do find out which ones are going to stay with you in the long-term, and which ones are fun but transient joys to appreciate in the moment.
you learn that the world is so much more complex than you were taught, and that that's okay, and that there's an endless supply of things you can learn or watch or experience or think about if you want to. if you're lucky, you loosen up, stop putting so much pressure on yourself. if you're lucky, you learn to recognize that negative inner voice, and whack it with a baseball bat until it hushes up. if you're lucky, you learn to treat yourself gently, not because you are fragile but because you are worthy of gentleness. (i hope you are lucky.)
and some things will change. some things will get better. some things will get good. and maybe you start to recover from the dehumanizing stress of childhood/education. maybe you learn the power of your own autonomy. maybe you learn how to walk away from bad situations (which is a superpower even if you don't realize it yet). and you get to choose your own clothes. and your own food. and which relationships to pursue! and what you do with your free time. and with your life (but don't worry you get to choose that gradually). and that's crazy! and sometimes scary. and extraordinarily, indescribably precious.
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