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#dialysis diet
tattooed-alchemist · 2 years
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My sibling found a recipe for egg muffins which fit the bill for Dad’s need for protein and can be adapted to meet dialysis diet needs too, so once a week I crank out a big batch of these things.   Dad gets them mostly as a snack, with some unsalted rice “crunch rollers” and a fruit cup.
We have to store them in the fridge in an opaque and unlabeled container, because if Dad realizes they are there, he will eat them like they are cupcakes, and suddenly five them of them will be gone.  An unmarked container, especially one not in the front row of the fridge, doesn’t seem to register on his snacking radar.  
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ayin-me-yesh · 1 year
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Something I see online that's frustrating to me is you'll get people telling the vegan activists who promote veganism as a universal ideal that there are disabled people who can't have a vegan diet, but then a lot of the people who point this out don't seem to know what conditions actually cause that. And then you end up having arguments about that so I want to actually point out a few examples
I think the number one example where there's no way to safely, healthfully avoid having to consume animal products is haemodialysis for kidney failure. People on dialysis need more protein than other people because they lose protein and blood cells during the dialysis process, and they are required to have a low potassium diet because their kidneys can't filter potassium. This means legumes and soy aren't viable alternatives. [x] "Renal dietitians encourage most people on haemodialysis to eat high-quality protein because it produces less waste for removal during dialysis. High-quality protein comes from meat, poultry, fish, and eggs." [x] If you can't meet your protein needs with these foods for whatever reason, you'll be prescribed whey protein powder, which is made from dairy. [x]
Ketogenic diets are also high in animal proteins. They're innately low carb and high in fat, which means legumes and other meat alternatives aren't a great fit. "The ketogenic diet can boost insulin sensitivity and cause fat loss, leading to significant health benefits for people with type 2 diabetes or prediabetes." [x] PCOS, a common condition effecting about 10% of people who menstruate, is also often treated with a low carb, high protein diet because it involves insulin resistance. [x]
Ketogenic diets may also be recommended to treat seizures in epilepsy. [x] It is most frequently used for focal seizures in children, infantile spasms, Rett syndrome, tuberous sclerosis complex, Dravet syndrome, Doose syndrome, and GLUT-1 deficiency. In these conditions, ketogenic diets can reduce or even eliminate seizures.
People with food allergies can find it difficult to afford safe and healthy food in general. [x] The inability to rely on cheap, plant-based proteins like canned beans or dried lentils can be a general hardship, especially when disabilities themselves can limit job opportunities or the capacity to work.
Intestinal disorders are another factor that can make vegan diets difficult. Foods high in insoluble fibre, like beans and other legumes, as well as nuts and seeds, can cause Crohn's flare ups in some people. [x] Seeds, nuts, and legumes can also be trigger foods for people with ulcerative colitis. [x] IBD flare ups are not like a run-of-the-mill case of intestinal discomfort. They can land people in the hospital and require major surgery. [x]
For allergies, the main factor that can make a vegan diet difficult isn't allergy to specific vegetables, but to specific plant proteins. Someone who is allergic to soy, peanuts, or other legumes will have more limited options for meeting their daily protein requirements on a vegan diet. People with allergies to a broad spectrum of legumes may not have any reasonable substitution options. Substitutions can also increase the price point and make a vegan diet too expensive for people in poverty who also have allergies. Poor people with food allergies may find it difficult in general to afford a safe and healthy diet. [x]
For some people, including some disabled people, a vegan diet may in fact be ideal. Vegan diets can certainly be part of a healthy diet when trying to reduce bad cholesterol [x], treat high blood pressure [x], or treat earlier stages of kidney disease. [x] And while insulin resistance may be best treated with a ketogenic diet in some people, others do seem to benefit from a plant-based diet instead. [x] A person's diabetes specialist and trained dietitians can help them figure out which is best for them, potentially based on other factors like whether or not they have high blood pressure or bad cholesterol, or whether their diabetes risks are linked to PCOS or other known metabolic conditions.
Achieving sustainable food production and equal access to a safe, nutritious, well-balanced diet is fundamental to us all. But there's simply no one-size-fits-all ideal human diet, and that's something everyone needs to take into account.
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jesssurvives · 6 months
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Pumpkin Cream Cheese Muffins that are stage 1-5 CKD and dialysis friendly.
If you or anyone you know had A+ blood and want to donate a kidney let me know. 34 years old and on dialysis and in need of a new kidney
Courtesy of National Kidney Foundation.
Ingredients:
Ingredients
8
oz. cream cheese
3
eggs
3
tablespoons Stevia
cup sugar
2
cups flour
1
tablespoon cinnamon
2
teaspoons baking powder
¼
teaspoon baking soda
cups pumpkin puree
cup apple sauce
2
teaspoons vanilla extract
Directions:
Prep
25mins
Cook
30mins
Total
55mins
Heat oven to 375 F
line muffin tins with paper cups and set aside.
Mix cream cheese, 1 egg, Stevia (about 3 tbsp) together, and set aside.
In a mixing bowl combine 2 eggs, pumpkin, apple sauce, and vanilla extract.
Sift your dry ingredients together sugar (about 1.75 cups), flour, cinnamon, baking powder, and baking soda.
Pour your dry ingredients into your pumpkin mixture and don't over mix your batter, it just needs to be moist.
Spoon half your batter into 24 muffin cups. Spoon a dollop of cream cheese mixture on top of the pumpkin mixture in each muffin cup, and then top each with the rest of the pumpkin mixture.
Bake for 20 to 25 minutes or until a toothpick comes out clean.
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alfakidneycare · 6 months
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https://alfakidneycare.com/what-should-you-eat-during-hemodialysis/
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kidneytreatment01 · 7 months
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Chronic Kidney Disease: Signs, Symptoms, and Treatment
Kidney issues can be an extremely serious health issue, and it's crucial to be aware of the signs and understand the kidney function tests as well as be alert to any chronic kidney disease. Kidneys are the vital organ that are responsible for removing the excess fluids and waste from the blood. If they're not functioning correctly, they can cause various health problems.
Being aware of the symptoms of kidney failure is vital for prompt intervention. The most common kidney failure symptoms are:
Fatigue: Feeling exhausted even after a good night's rest is a normal early sign of kidney disease.
Swelling: Kidneys help regulate fluid balance. If they fail, excessive fluid may build up and cause swelling in the ankles, legs or feet. It can also affect the face.
The appearance of a reduction in urine output could be a sign of kidney problems.
Difficulty Breathing: A lot of fluid build-up can affect the lungs, which can cause breathing problems and shortness of breath.
Nausea and vomiting: A build-up of waste substances in the blood caused by kidney problems can trigger vomiting and nausea.
Kidney infections can create extreme symptoms that must not be ignored. The kidney infection symptoms include:
Fever: A high fever is usually a sign of kidney inflammation that is accompanied by chills and sweating.
Pain: A pain in the back of your lower on the side, typically only on one side, maybe a sign of a kidney infection.
Frequent Urination: A constant need to go for urination, often accompanied by a burning feeling, could also be present.
To determine the cause of kidney problems precisely, Healthcare professionals might suggest various kidney function tests:
Blood Tests The blood urea nitrogen (BUN) and levels of creatinine are often measured by a test. A rise in levels may indicate kidney disease.
Urinalysis A urine test may reveal any abnormalities, such as protein, blood or even abnormal cells.
GFR: Glomerular Filtration Rate (GFR) GFR is a measurement that measures how well the kidneys filter out waste from the blood.
Imaging Studies: It's possible to detect structural problems that affect kidneys with detailed images derived by imaging procedures such as the ultrasound technique, CT scans and MRIs.
Kidney biopsy: in certain instances, a small amount of kidney tissue could be taken for closer inspection.
Chronic Kidney Disease is a chronic condition that is marked by the gradual decline in kidney functions with time. It is crucial to recognize CKD early in order to treat and prevent its progression. The most common causes are the presence of diabetes as well as high blood pressure. Signs of CKD might not become apparent until the disease has progressed; however, they could be a sign of:
More fatigue In the course of CKD advances, fatigue could get more severe.
The loss of appetite, A decreased desire to eat, and unintentional weight loss may be signs of CKD.
Muscle Cramps and itching: The accumulation of waste products may cause discomfort, which can include muscle cramps and skin itching.
Problems with Concentration: Cognitive issues and difficulty focusing can be present.
The best way to prevent kidney problems is by maintaining an active lifestyle, addressing the underlying health issues by staying hydrated and staying clear of excessive use of drugs that can damage kidneys. Kidney problems treatment is based on the cause of the problem and the severity of the problem.
If you want to know for kidney treatment homeopathy, then you can visit my original blog. The link has been provided below: 
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sriasskidneycare · 10 months
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Are you suffering from chronic kidney disease or CKD and still searching that can CKD cure naturally?
For expert guidance and help -
Contact details -
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villain-crown · 8 days
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traitor | @jegulus-microfic | words: 755
critical care, part 5 (part 1, part 2, part 3, part 4, part 6)
a Jegulus nurse!AU
* back by popular demand
Lunch.
Together.
Just Regulus and James.
Oh yeah, and apparently Tom fucking Riddle too.
James couldn’t believe this. He’d summoned every drop of disregard for his own physical wellbeing to ask Regulus out, and Dr. Slughorn’s bloody fellow had decided to swoop in and ruin the whole thing!
Tom Riddle Jr. was tall and handsome with very neatly coiffed black hair and a regal face, not much older than them. At first, James had thought he was just passing by their table, so the idle chit chat hadn’t bothered him—especially when Regulus had to tilt his head back and bare his lovely neck to accommodate Riddle’s position standing nearly on top of him. But then Riddle had the gall to ask if he could take a seat, and James, not wanting to be rude, had agreed. Things had gone downhill from there as the Slytherin fellow had firmly excluded James from the conversation as he began to engage Regulus on unit-specific subjects and events that he had no way of providing input on.
“How is the dialysis line I put in?” Riddle asked about five minutes into all this.
“Perfect,” Regulus answered, his silver gaze flicking to James. He kept doing that. It was like he was waiting for something, but James wasn’t sure what.
He withheld a scowl at the cardiothoracic fellow’s flash of perfect teeth. “Excellent. You were so helpful getting that done. I don’t know what my resident was thinking, bringing the kit without a pigtail with him. Lucius is usually much smarter than that. You really are always one step ahead of everyone, Regulus. So good.”
Apparently, Regulus was not as unlike Sirius as James had originally thought because he preened at the complement in just the same way. His desire for approval would have been nice to learn later on when he had Regulus on his knees sucking him off, James’s fingers tugging roughly through his soft curls as he uttered praise for his gorgeous tongue—not here in the cafeteria watching Riddle blatantly flirt with his lunch date right under James’s nose.
He couldn’t take it anymore.
“Get your own nurse, Riddle,” James finally snapped, goodwill and politeness dismissed. “This one’s taken.”
The two Slytherins looked over at him in surprise—Riddle with a bit of amusement and Regulus with such obvious interest that James could feel his traitorous heart uptick in response.
“Taken?” Riddle repeated with a smirk, leaning back in his seat. “He doesn’t look all that taken, Potter, and believe me, I’m familiar with what he looks like when he is.”
“Well I’m looking forward to seeing it for myself really soon, so no spoilers.”
Riddle laughed. “That’s presumptuous. You always did think you were better than everyone else. I’m starting to remember that about you now from my residency days.”
“Oh, I’m not saying I’m better than everyone. I’m just better than you.”
James wasn’t sure what Regulus had been waiting for the whole time Riddle was inflicting his presence on them. Regulus didn’t strike him as the kind of guy to suffer silently, but maybe he wasn’t suffering at all, but simply enjoying James’s torment. At last, however, it seemed that he had finally been satisfied; that James had passed some kind of test.
“Hey Riddle?” Regulus interrupted calmly.
“Yeah?”
“Fuck off.”
Riddle stared hard at Regulus and wow okay maybe James wasn’t the only one who liked his lovers feisty. He looked equal parts pissed off and ravenous. “‘Fuck off,’” he repeated darkly. “Just like that, huh?”
“Just like that,” Regulus agreed, peeling the lid off his clam chowder.
Riddle’s lips twisted in a smirk even as he toyed with his soda straw. “Now really, Regulus, what use are you going to have for him? Potter’s the most generically pleasant person in the tower; the personification of a low-sodium diet. He’s a third rate nurse running a fourth rate unit.”
“And you’re a fifth rate doctor with a sixth rate personality, so now what?”
He’s just so fucking fiery, James groaned to himself, unsuccessfully attempting to hold it together. Bloody hell, I need a minute.
Apparently Riddle was thinking along the same lines because he ran his tongue over his teeth in obvious frustration, his carmel-brown eyes glinting. “Reconsider.”
“We're off the unit. That means I don’t take orders from you.”
“Regul—“
“Don’t make me tell you twice. It makes you look desperate.”
There was a short, charged silence as the two frankly vicious personalities clashed like swords before James’s eyes. Riddle looked like he wanted to jump the petite brunet right there and then, but Regulus looked completely unconcerned, even dismissive. Eventually, Riddle had no choice but to back off with an irritated scoff, pick up his soda and strut off towards a table on the other side of the dining room populated by people in monochromatic light blue OR scrubs.
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owlpellet · 8 months
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What's something Niram is really bad at? What would he say his best trait is and what is it actually? How do his health complications impact his day-to-day? What would you say his most striking feature is? (Other than not having hands anymore) What subjects does he most like to paint?
Oh man oh man.
-So he's obviously really bad at anything that involves physical activity. He's an emaciated little shrimp with the core strength of a bean burrito who doesn't have any hands and is slowly making his own legs atrophy by choosing to levitate everywhere instead of walk like a normal person. His STR is 7. His magehand weight limit is probably higher than what he could have comfortably carried around before.
But no, his actual weak point that causes Real Problems is he sucks at lying. He sucks at it so bad. Whether it's some deep ancient fae ancestry nonsense or horrible contingency spiraling about having to maintain the lie like he claims isn't really clear, but he will avoid having to lie at all costs. He cannot force his way through one. He would rather be truthful and face the consequences of this than have to keep track of falsehoods and who knows them, although sometimes this also just means he has a big mouth about stuff he doesn't think matters.
This doesn't mean he's *compelled* to truth, though. He can simply stay quiet about a subject, or give only partial information, and he can lie for the sake of a brief joke or surprise, but if forced into a "yes or no?" type of situation his honesty is almost guaranteed.
-The biggest complication when it comes to his health is definitely his diet, at least when off campus. Turns out a lot of people take it as an insult when you won't eat their food, even when you explain why, and people can also be really weird about abstinence from drinking! His teammate Sayid graciously assists Niram in purging what his body can't filter by taking on some of the malaise for him and going through bathroom hell (just Ilmaterite things, we call it the holy dialysis), and it's one of the few things in life he grapples with guilt about.
I do also acknowledge in games the frequent toilet trips he needs, though don't derail RP for them unless they're narratively relevant or funny.
While not directly related to his internal health, he also encounters a lot of accessibility issues now that he doesn't have hands. The magehands allow for him to manipulate objects, but the disconnect from his actual body still presents a lot of challenges-- the session before last they actually had to work with Yuri's dad (an artificer) to modify special slot-style handlebars for him to attach to his magic broom that he had previously just been wrapping his elbows around for dear life.
Also sometimes he just... forgets they're not there anymore. It's been such a short while compared to a whole life of having them. He's had a few bodily collisions with things where a well-placed hand should have stopped that. Like... leaning against a wall.
-His most striking feature is probably that receding hairline and extreme widow's peak. Content-aware scaled, color-inverted Vegeta lookin mf. He would probably agree.
-He loves doing portraits/figures of all kinds but I think after a lot of practice and honing his skills he'll find he likes dragons, dragonborn, lizardfolk, aarakocra, and other scaled or feathered individuals because he finds the patterns/color variety soothing rather than tedious.
This differs from his sketching in his journal, which is a less time-consuming process in which he doesn't try to get so lost. His favorite things to sketch/ink are bones. Of course.
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game-of-style · 1 year
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So I’ve been in and out of hospitals as my condition is getting bad to worse
I am a 29 years old woman living in Hungary, possibly the worst political and economically set back EU country. Our healthcare among with many other things like public education, wellfare or transport is crumbling under Orbán’s shitty policies 
This year in February I was diagnosed with MNGIE (Mitochondrial neurogastrointestinal encephalopathy) a condition that affects several parts of the body, particularly the digestive system and nervous system. Currently I am entirely deaf, underweight and in chronic pain. I am doing CAPD at home (peritoneal dialysis) and on the liver transplant list. . 
Yet my condition is worsening as I am suffering from gastrointestinal pain, vomiting and hypokalaemia. 
My doctors pretty much gave up on me. Theyre not treating my pain or my surfacing symptons or even expalining it to me. I have reached out to several clinics (one in Germany and one in the UK), but so far I haven’t even got a reply. I am without any help in this and I feel like its consuming me. 
I am without a job and my monthly income is around 80k HUF = 195 EUR = 195 USD. With current horrible inflation, that is not enough to last me through meds, the dialysis attachements, monthly trips to Budapest and my special diet. 
Please donate to my paypal if you can  paypal.me/gameofstyle
Reblogs help as well
Thank you so much!!!
/some pictures after the cut
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this is me on the transplant clinic 
me in the local hospital after a seizure
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this is my cat who lives w my Grandparents bcause I cant have him in my place bcause of the dialysis (everything has to be sterile). I miss him very much
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me in june with the feeeding tube what i ended up throwing up
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my neck after emergency hemodialysis
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me after surgery (one of the many)
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jj-lynn21 · 1 year
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I just saw a news report on Dialysis that made it look like death sentence. It is not. I am currently on Dialysis and have been on and off my entire life. I started Dialysis when I was 9. The biggest thing is to follow the special diet they put you on.
There is fluid restrictions, no dairy, you can not eat anything with high phosphorus or hight potassium. I cut out most processed foods. I drink about 25ozes a day. This is because your healthy kidneys get rid of all that & the Dialysis machine can only pull off a small amount without taxing your body.
I drive myself to & from dialysis 3 days a week. I am on the machine for 3 hours. I was on 6 hours when I started, but because I am good at my dialysis diet my time was lowered.
It is a long wait for a transplant. I received a kidney from my dad when I was 10 , so I was only on Dialysis a year the first time. I went to the dentist before Jr high high and he was going to fix my teeth. I have no enamel due to medications. I had a tiny abscess that went to kidney & killed it within 24 hours.
I was on Dialysis 10 years after that before getting another kidney that lasted 23 years. By the way I went to school after or before Dialysis during that time. I graduated high school & started college. I think of Dialysis as more of an inconvenience than anything else. I sit there & watch TV. I would probably be doing that at home.
Dialysis is not painful. I have a great fistula that they do stick needles in but the skin is numb so you don't really feel it. I just relax and let it clean my blood.
Now if you choose not to follow the special diet you could have issues with high potassium which gives you terrible charlie horse cramps. I have seen people get them bad so for me it is worth giving up French fries & cheese.
I still take my dog for walks even right when I get home from dialysis. I seem to get a burst of energy right after. I can go on vacations, & just set up appointments at a dialysis center closest to where I am vacationing. If done right it makes you feel better.
The end goal is eventually another kidney transplant, or if I am really lucky I can try out the artificial kidney they are working on. That's my dream. But until that time dialysis is not a death sentence. It is just a way of life. To stay slive.
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kemetic-dreams · 1 year
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Understanding African American and non-African American eGFR laboratory results
Understanding why eGFR laboratory reports include African American and non-African American results
Glomerular filtration rate (GFR) is the best way to measure how well your kidneys are working, but this test is complicated and cannot be easily done in a doctor’s office. To get around this, laboratories use mathematical equations to estimate the glomerular filtration rate instead of measuring it. This is why laboratories report estimated GFR or eGFR.
Two commonly used estimating equations for eGFR are the CKD MDRD (Modification of Diet in Renal Disease) and the CKD EPI (Chronic Kidney Disease Epidemiology Collaboration) equations. Using these math equations, eGFR is calculated from the amount of creatinine in the blood.
Creatinine is a waste product that comes from the normal wear and tear on your body’s muscles and also from the foods you eat. Everyone has creatinine in their bloodstream. However, creatinine levels can differ between people. This reason for this difference may not only be related to kidney disease – it may be affected by several other factors, such as age, sex, and body weight.
Race was originally included in eGFR calculations because clinical trials demonstrated that people who self-identify as Black/African American can have, on average, higher levels of creatinine in their blood. It was thought the reason why was due to differences in muscle mass, diet, and the way the kidneys eliminate creatinine. Since a patient’s race is not always used when laboratory tests are ordered, laboratories used different eGFR calculations for African American and non-African American and included both numbers in their lab results.
The use of race in calculating eGFR has been a subject of debate. Race is not a biological concept, but a social construct. Using race as a factor for calculating eGFR does not account for the diversity within communities of color. Also, people who self-identify as multiracial might not want to be put in a single racial bucket.
What is the NKF doing to address concerns about using race in measuring eGFR?
In 2020, the National Kidney Foundation (NKF) and the American Society of Nephrology (ASN) formed a joint task force to review the use of race in eGFR calculations. On September 23, 2021, the Task Force announced a new race-free calculation for estimating eGFR. The National Kidney Foundation is working with the nation’s laboratories to get this new calculation into use as quickly as possible.  The NKF is also creating materials to show how this new equation may impact patient care.
How is eGFR used?
Estimated GFR is one of the key tests for diagnosing kidney disease. The earlier kidney disease is detected, the better the chance of managing it or keeping your condition from getting worse. Your eGFR informs healthcare professionals about your kidney function and helps them to recommend the best treatments for you. For instance, eGFR results are used in the following ways:
Confirming that kidney function is normal for a potential living kidney donor
Making sure the right dose of medicine is used
Enrollment in clinical trials that use kidney function as an inclusion or exclusion criterion
Making sure the right type of imaging tests and dyes are used
When to refer someone to a nephrologist or kidney doctor
If and when to plan for dialysis
When to start an evaluation for a kidney transplant
Although the NKF alone cannot solve all inequalities, the NKF is working to help identify, confront and reverse them. NKF advocates for making affordable healthcare more available and making sure that communities of color are not left behind. NKF’s CARES helpline is available to all people with kidney disease. NKF’s educational offerings include the impact of kidney disease on diverse communities, and the reasons why communities of color have been disproportionately affected by COVID-19. NKF is committed to continuing its work to address inequalities in kidney health.
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jesssurvives · 8 months
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Dinner tonight. Grilled chicken. Egg whites. Spinach. Two tomato slices. Cucumber. Mozzarella. Made for a nice kidney friendly dinner. Low in phosphorus and not too high in protein. And for dessert. Chocolate tower cake. Yumm. Don’t tell my nephrologist. 🤫
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campcrow2 · 10 months
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Bodies don’t make sense at all. For years I’ve been told to monitor my potassium intake because kidney failure. Surprise kidneys filter potassium in the blood of they don’t work, it builds up. Shockingly mine is always low leading to a lot of cramping from dialysis. So. I’m supposed to eat more potassium, but less phosphorus which is I’m everything like meat but I’m also supposed to eat more protien but not from not meat sources. Like……renal diets on dialysis is disordered eating 101. Monitor everything you eat, monitor every ounce of fluid intake and output….monitor your weight and blood pressure religiously…….
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nice-bright-colors · 1 year
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Brain Dump 11.11.22
I forgot today was a bank holiday, some maybe tomorrow or Monday an electronic deposit may occur
If not, it will be a month since I’ve gotten paid, and outstanding invoices will be in the five figures
My sister called my wife yesterday, she’s filling out medical paperwork with my Dad
Turns out he is giving her medical power of authority, I’m second, my wife third
Note that my BIL, who also lives with him is not involved
My BIL has his own health issues, heart condition, untreated diabetes for at least 15 years, leg wounds - he’s basically checked out…but can still go to the casino and play poker for 36 hours straight
My sister is prepared for her husband to die, and not her father
It looks like our father will be starting dialysis on his kidneys soon, he may not be a candidate for at home dialysis
He has also refused to be put on a donor list, because he doesn’t want to ask either of his children for a kidney transplant
My sister is in her early 50’s, our mother, and our maternal grandmother both died in their early 60’s
So if you play the odds she has about 10 years, also she has a poor diet, overweight, work-a-holic…hmm runs in the family…no stress reliever
At least she’s never showed any signs of carrying the alcoholic gene
It dawned on me today that I could be the only person left in my immediate family before I turn 60, most likely parent less before age 55
It also dawned on me today that I really need to up my at home yoga routine, because I’m insanely stiff and inflexible
My brain only feels slightly less heavy since dumping this, I probably need to restart my at home meditation routine as well
Nice to know that my own family doesn’t call me about our own family business, but they call my wife
I really need to link my business and personal accounts so money transfer can happen effortlessly
I really wanted to get outside with my camera today, but right now it’s 21°F outside, so ummm nope
I’m about to engage and embark on a couple of projects that will be the largest things I’ve been involved with in my professional career
One will be about a $25M hotel renovation, the other will be a $175M (possibly more) brand new hotel tower…welcome to the Big Leagues
Not to mention the 5 or 6 smaller projects at or around $10M each that I’m also in control of
Sounds like I need to resurrect my plan to find a local professional therapist that deals with the high stress professions and burnout
If I could only find the time
Maybe I should just to back to bed, a vacation would be nice
Reminds me, I still need to update my expired passport
I also need to get new tires before winter really sets in
I’m just guessing that pretty soon my IPhone 11Pro Max is going to take a shit, and I’ll need a new phone
But hey, at least I’ve got travel pants and sport shirts
Did I mention that I’m starting to wear down the soles of my boots
At any given time, these are just a few of the things that are constantly running through my brain. Maybe Tumblr is my professional therapist? Maybe so are the bartenders, servers, and lounge employees I’m starting to befriend by name since I’ve seen them so much lately.
I can feel it kicking into gear, my life is about to get crazy stupid busy again.
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Gloria Harris-Isom, Kidney Transplant Recipient
Gloria Harris-Isom is a two-time kidney transplant recipient, and participated in our Roadmap for Kidney Transplantation video series. She also attended the Kidney Foundation of Ohio 31st Annual Gala to share her story. 
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At 43 years old, Gloria was experiencing swelling in her feet, and through bloodwork and a process of elimination she was diagnosed with glomerular nephritis and nephrotic syndrome. 
She was shocked. As a nurse herself, and with what she knew of her family history, she made an effort to live a healthy lifestyle. “Why me?” was her reaction. She felt she had “done everything right”, and was overwhelmed. 
Her doctors thought it would be something she would just need to manage for awhile. They felt the chances of her going into kidney failure were rare. She took medications and modified her diet, but bloodwork eventually started to show signs of kidney failure. Her nephrologist informed her she would need a kidney transplant. 
Gloria wasted no time reaching out to family and friends to see if they would get tested to be a living donor. Her brothers volunteered to be evaluated and, although both were matches, one was a better match than the other. 
She received her first transplant at University Hospitals Transplant Institute in 2002, three years after finding out about her kidney disease. 
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11 years later, Gloria tore her aorta while doing a sit up. She woke up and was on dialysis. She was told her kidney had failed. 
After doing in-center dialysis for a few weeks, she made the decision to move to in-home dialysis. She felt it provided her more autonomy, a more normal lifestyle. She was still able to work and travel if she wanted. In-home dialysis also provides near normal kidney function, and she felt comfortable with the process due to her nursing background. 
Gloria continued on dialysis for two years until her second transplant in 2015, which took place at Walter Reed Military Medical Center. Gloria is in the military so she was listed at the VA and three other transplant centers. Her second kidney transplant came from a deceased donor - a young soldier who lost his life. She received his left kidney, and remains friends with the woman who received his right kidney.
How is she feeling today? “The transplants have afforded me the ability to enjoy life to the fullest, the best I can”. While she still has to be considerate of everything she does, she is able to work part-time, travel, and be with friends.
Hear more from Gloria, and other transplant recipients, in Roadmap for Kidney Transplantation: Part Three.
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sleuthy-scientist · 1 year
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La Famiglia è per Sempre Chapter 1
Summary: David Rossi finds out he might be dying. Afraid of the reality of his situation, he tries to rely on the people around him for support. His new reality makes him question the meaning in his life. Along the way he discovers the truth about family.
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The Doctors said he was lucky they caught it when they did, considering the common early detection signs and symptoms for his condition hadn't occured. Luck had nothing to really do with it, Emily had been the one to convince him to get tested. First goading him to try and prove her wrong. And when that tactic didn't work, guilt tripping him with full on puppy dog eyes pleading, for her sake and peace of mind.
They told him that he had Polycystic kidney disease (PKD), Autosomal dominant polycystic kidney disease (ADPKD) to be exact. That his condition is a genetic disorder that causes cysts to grow in the kidneys, where they can disrupt functioning.
His high blood pressure had been noted in his charts by his regular physician with the suspected underlying cause of the stress due to a combination of his job and age. Yet unfortunately because of this slight oversight with his hypertension, his condition had progressed to the beginning stages of kidney failure.
Dave knew this immediately spelled desk duty for him. That his time as a field was done and his agent status may soon to have effectively come to an end. He had always assumed he would have retired this time due and work related injury or died a noble death on the job. It pained him knowing this could be the beginning of the end for him and his career.
The doctors with his input immediately came up with a plan of action. They decided to start him on medications and dialysis once a week, hoping that would be sufficient. That within a few weeks they would reevaluate, having a clearer picture and better handle on the needs and limitations of his condition.
With an actual diagnosis and regular treatment plan in place, Dave knew he wouldn't be able to hide it from the team for long. Especially with his treatment starting in two days. He knew he needed to start to get the priorities of his life in order, if he hoped to have any life left to live. His other priority was Joy and his BAU family. Until he had more news he didn't want to worry his daughter with his medical condition. That left the individuals who had already seen him at his worst, the ones who shared his everyday life. The people who he was responsible for, who he wanted to rely on him and be able to always support. Not the other way around, but he knew that may no longer be his decision. He couldn't lie or decide to up and leave them with no explanation. In their line of work they lost too many people and were left with to many regrets. He knew they would never forgive him if he kept this a secret. If he chose to disappear and slowly die on his own without them, out of pride or fear.
David Rossi was a lot of things, but he wasn't stupid, he knew he needed their support if he had any hopes of beating this thing. So he invited them over, for what might be the last team dinner he hosted for awhile. He wanted to have one more meal as a family with some semblance or sense of normalcy, knowing his news could wait until after dessert to be announced.
Everyone had been shocked and rendered momentarily speechless, worried for him upon learning of the life altering news he received. No one expected the nerve wracked Reid to be the first one to find words to fill the silence that had overtaken the room.
With his diagnosis, Spencer informed them all that typically his disease was caught a decade of two earlier and managed through diet, excercise and medication. That it had a fairly decent outcome and life expectancy if he followed the treatment plan.
He spouted off some other statistics most instantly forgot, too distracted by their own thoughts and feelings on the matter. But they still understood the gist of the genius's intended spiel. He was just as worried and distraught as the rest of them, try to make sense of the information they learned. But most of all afraid of the possibility of losing a piece of their family.
Once Reid finished speaking, he couldn't hold off the tears he had been trying to keep at bay. No one in the room was completely dry eyed as they all tried to digest the news. Slowly they all began to ask clarifying questions of the man of the hour about his condition and next steps going forward.
Hours later, Emily had been the last to leave, only showing the depth of her true emotions to him. Dave held onto her a little longer than usual, needing her strength, afraid to let go knowing he couldn't stop whatever came next for him. That this wasn't some nightmare he could simply wake up from.
As their embrace broke, he asked her what made her force him to get tested. He was hoping she would say something profound and wise, that would resonate with in him, and help him make sense of things.
Yet, she simply told him, it was a gut feeling she had, especially with his abnormal headaches as of late. That to her, something about him just seemed off, that he didn't seem himself with his usual laser sharp level of focus and observation. She couldn't explain it beyond that, beside knowing she needed him to be okay.
While her words hadn't provided him the type of clarification he had secretly and niavely hoping for, nor could she fix the predicament he found himself in, what she said provided another form of relief from his pain.
He wasn't surprised she of all people had noticed, Emily was the best profiler he had ever had the pleasure of working with. With her extreme empathy and gut instincts, she had always been the one looking out and supporting others, making sure they were ok. She had always been the first person to notice something was wrong and to begin trying to make it right.
He was just glad to have someone who obviously cared that deeply for his well-being in his life. For her sake and the team's, he wanted to bravely fight until he ran out of options. He hadn't given up against an enemy before, he wasn't about to start now.
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