As a disabled person, I'm telling you right now:
Act disabled.
Stop telling yourself you're acting more disabled than you are.
Crawl to clean your room, use a wheelchair when you're "only" at level 3 pain, wear all the wraps and ice packs
Allow yourself to act disabled and you'll see that it helps you a whole lot when you allow yourself to use any and all tools
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This could really be me, except I was diagnosed even later in life. It truly feels like a life robbed off our identity. Never feeling seen or heard by others. Never being understood, not even today. Except at least now we know why.
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Getting a diagnosis finally broke the spell my parents had put on me for my whole life. The spell that said it’s rude to be on your phone at dinner or to wear ear plugs/headphones around others. Getting diagnosed finally let me seek out accommodations to make me more comfortable in a world that isn’t built for my autistic brain. It helped me know that it’s okay to not make eye contact with strangers and that I can wear pajama pants all day if I want because the fabric is Right. I am disabled. This society isn’t built for people like me, but I can make my little corner of it a little more bearable.
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Why tf do we fold pjs? Oh no my shirt that literally only my stuffed animals and cat see will be wrinkly
Who exactly is going to stop me from putting my dirty clothes into a small childrens wagon to lug to the laundry room?
I feel like we really underestimate how much we can do sitting: fold? Wash dishes? Shower? Get ready in mirror? Clean? Cut up veggies?
Also no one has explained to me why i cant make my bed while still in it? Like even if I can only do 80% while in it, thats still 80%??
If i throw out all my tubber ware, and get a bunch of only one kind, I'll never have to look for lids. Same with socks!
Separating clothes by color is stupid.
We need less "I'm gonna stack these nicely here so they look nice" and more "I have 85 nice boxes from Joann fabrics, each one has things it in because the boxes hide the fucks I don't give. Socks go in here, papers i need go in here, candles over there, art supplies, pet stuff, meds, pants, books, blankets, makeup, pillows, etc."
Normalize crawling around on your floor to pick up things and tossing them over to the corner of the room closest to where they belong so you can then crawl over there and sit while putting them away.
Normalize screaming.
Why must we eat so many things that we do not like? If I like 5/400 veggies, guess what? Im gonna get so many vitamins from them and anything I'm missing I'm gonna get from other food groups! Its pretty unlikely that I'm missing a crap ton of vitamins when most veggies got 7/10 of the vitamins you need.
Normalize purposefully planning to do nothing at certain times of the day. Sorry I can't go to the park, I'm staring at my wall for 45 minutes at that time, today is the west wall :)
Why do I need to do anything for attention from my friends/partner, why can't I just tell someone I want attention and get my sim bar filled then and there?
All cardboard boxes are canvases waiting for the day.
Why do we even have large spoons in our houses anymore?? We always say we hate them and then we have like 20!!
Let go of the idea that anything is written in stone
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People all claim to be supportive until
- we stim in a way you find “weird”
- we have explosive meltdowns in public
- we don’t mask at social events and come across as awkward
- we talk about our special interests that are not mainstream
- we’re blunt with you and you can’t take it
Accept everything that makes us Autistic.
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My Loop earplugs are here!
The "Quiet" I hope to try on the plane, when a music festival is happening nearby, or I otherwise can't sleep due to noise.
The "Engage" I hope to try next time I'm at a restaurant or pub!
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Shout out to the San Diego Zoo! Not only do they have dedicated Quiet Zones where there is little foot traffic and less noise, they also have signs for “Headphone Zones” with signs to warn you when things might get extra loud quickly. As an autist with sensory processing issues, especially sound sensitivity, this was huge for me. I was able to enjoy the zoo without becoming totally overstimulated and shutting down.
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