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#Traumatic Brain Injury
chaoticautie · 8 months
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As someone who is somewhat of a “veteran” of the online ND community, I’m disappointed in the lack of positivity and love for lesser known diverse cognitive conditions, and the opposing abundance of posts about “cures” or outdated criteria or treatments for those conditions. So, without further ado, I want to say hello to anyone with any of the disorders I’m listing, and give them the love and support that hardly anyone else in our community has… Shoutout to:
People with Down syndrome
People with Fragile X
People with William’s syndrome
People with dyslexia
People with dyspraxia
People with dyscalculia
People with dysgraphia
People with Prader-Willi syndrome
People with PANS or PANDAS
People with aphasia
People with a TBI (traumatic brain injury)
People with chronic/early onset mental illnesses
People with cerebral palsy
People with FASD or were otherwise disabled via other substances in utero
And many, many more I may have forgotten to list (but still support and love, I will add more to my list)
You are all beautiful and wonderful, and you all deserve so more love, appreciation, acceptance and support. You are just as neurodiverse as the rest of us, and your voices deserve to be heard and amplified.
I love you all ❤️
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positivelyqueer · 28 days
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give love to people with traumatic brain injury, acquired brain injury, stroke, neurological condition, worsening mental health, trauma, PTSD and all other brain based conditions that make you feel conflicted about your identity. About whether or not you’re the ‘same person’ you were before your injury or illness. People constant evolve and change but can be more difficult when changes more sudden, pronounced, and noticed by others. I hope you are doing well and are able to find some peace, support and love.
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anexperimentallife · 3 months
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xenodelic · 2 years
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There is so much shame that comes with having amnesia and other memory issues.
As someone that has multiple conditions that cause memory loss (DID, TBI, ADHD, etc) we can't even begin to describe the shame and guilt that is conditioned into people who are """forgetful""".
Having memory issues does not make you a bad person. It doesn't mean you are uncaring, lazy, or immature.
Memory is simply one of the many things that people can struggle with. It has nothing to do with who you are as a person. We are conditioned to think otherwise because being "forgetful" makes people less productive to a capitalist society. Society is arranged to make life a living hell for people with memory issues. This is an aspect of structural ableism. People in power do not want people like us to exist because we are less useful to them.
Dont get me wrong - it can absolutely hurt when someone you care about forgets something that's important to you. You're not wrong for feeling upset that someone missed an important date, event, detail, etc. That makes sense and feeling that way is not inherently ableist.
All we ask for is for compassion to be extended to people who struggle with memory. We ask for people to stop assigning moral value to how effective someone's memory is. We desire for social structures to accommodate people of all cognitive functions, not just those who are most productive to a capitalist machine.
And if you are someone with memory issues, know you do not need to be ashamed. We've been conditioned to hold negative beliefs about ourselves and our struggles for somebody else's benefit. Guilt and shame will not resolve our struggles. You are worthy and valuable as you are.
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s1yeye · 6 months
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people seem forget nonverbal semiverbal speech unreliable speech loss all can be caused by things not autism outside of autism. kuru i me is not nonverbal semiverbal self, but body have somewhat frequent speech loss, and many alters (like self) speak weird funny or not speak at all. is mostly part of us our schizophrenia and brain damage and ID. we autism autistic too, but autism tend cause more words speak hyperverbal lot lot lots words spill out ramble off, rather than hard to speak hard make sentence hard words or no at all.
this post, want say hello and i see you to others with schizospec or brain damage or ID who not speak or struggle speak some way because of it. you welcome here, is your community too. ^_^
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gayaest · 11 months
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Next of the first years for my paravolley AU is: Tsukishima 🏐🤍
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incognitopolls · 6 months
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We ask your questions so you don’t have to! Submit your questions to have them posted anonymously as polls.
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accessimojis · 5 months
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A few disability wordmojis!
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Autism, asthma, heart disease, CFS(ME), TBI (traumatic brain injury), diplegia, hemiplegia, monoplegia, paraplegia, quadriplegia.
Hope these look okay.
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victusinveritas · 7 months
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Head in ruins, Tania Font
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spooniestrongart · 18 days
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catmat · 1 year
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I ordered a Hidden Disabilities Sunflower card that I'm pretty excited about. I can't wait to wear it to medical appointments and outings as it will give me a sense of security knowing that people will better understand that I need extra support and time. This is also helpful when I can't vocalize or remember all of my ailments.
Here's an example of the card I got:
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The Sunflower program isn't as popular in Canada yet but it's picking up some traction. I hope by wearing my lanyard, it will not only give visibility to my brain injury but also to the fact that hidden disabilities require access and help too.
If you want to learn more, visit https://hiddendisabilitiesstore.com/
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lifewithchronicpain · 10 days
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Apparently rest is actively harmful for healing from a concussion. You actually heal better with targeted therapy. But many doctors have not updated the advice they give and continue to just recommend rest.
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lesbienyu · 4 months
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people have this Image of what brain damage/traumatic brain injuries (TBIs) look like and it's always one of these:
-basically the same as before, but with amnesia for dramatic effective
-vegetative state
-"brain of a child," or an adult who draws with crayons and speaks in monosyllables.
and like, yeah, that can be it, but there's a lot more. when I tell people I have brain damage, they usually think I'm joking because I seem pretty normal and I am! I was lucky - my brain bled, I had seizures, I shattered my skull, and, with the damage that was done, I'm very, very lucky that I'm as close to normal as I am thirteen months later.
but, at the same time, I do struggle with my symptoms a lot. I forget things and it's frustrating. and being frustrated with frontal lobe damage is different. it's less "ugh this is annoying" and more "I can't figure out why I can't get this, god am I stupid? what's happening? what was I trying to find?" for hours because I don't feel like forgetting things happened as much back then. I couldn't find a tube of paint today. before, I would've been annoyed and given up and moved on, but now it's this "if I can find it, that means I'm not as forgetful and I'm getting better. if I can't, there's gotta be a way to remember it." so I searched for three hours, even cleaned the basement, because maybe finding it would be proof I'm better.
and same with skills. I used to program. I had to go back to Hello World type stuff after. and it's hard, because I'll see the lessons and suddenly know it, but it's all stuff I used to be able to do without even thinking, let alone checking. I have pages of coding I wrote that I can't read, and I'm not sure I ever will be able to. I'm okay with that- relearning it is fun, and faster than learning it the first time, but it's like looking at a poem in an unknown language while knowing you were once the author.
or like, I love cooking. when I got my TBI, the majority of the damage was in my occipital lobe, which I'm told helps you see. everything was so bright for months. I had to learn to cook in the dark before it got better. I kept burning everything because I couldn't stand the lights on and it made me so mad because I've always been a great cook and it was suddenly gone.
I also lost my verbal filter with the frontal lobe damage to some degree. it's mortifying, being unsure if you thought something or said it out loud. imagine having a really nuanced, complex question that needs delicate phrasing and then just blurting out the bluntest possible version of it while still trying to think of how to phrase it and not realizing til after that you'd said it before you're ready. and it always comes off as so weird bc I generally have great social skills, I've been called charismatic and sociable, but then every once in a while it's like some robot with no social grace launching off random words and feeling mortified.
or just work. I love my job, I feel passionate about it, but I had to take almost a year off because I couldn't do basic tasks like look at maps or train new employees or even be able to comprehend what someone was asking me, let alone answer it.
I feel like I'm missing most of my life. it feels less like memories, and more like a book I read long ago or a movie I saw as a child. I couldn't tell you what the woman I spent half my adult life with looked like, just how I felt about her back then and that she had a dog and bad music taste. or what my childhood friends looked like, if they were in band or choir. I couldn't remember much about high school, or college, or the few years after- most of what I know is from memories so vague they feel like a dream several hours after waking, otherwise all the details of my life come from my journals and my loved ones. it's not a blank, just a vagueness, a fog. and it's terrifying, to hear stories about a self you don't recall being. I also used to be meaner, more serious and more negative, so there's some good that come out of it.
It just feels strange having a past self I won't meet or remember the same as most. and none of this is what I expected out of brain damage. overall, I don't think I feel different, but I don't remember well enough to say.
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anexperimentallife · 1 month
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And when you throw a traumatic brain injury and autism into the mix, HOO BOY!
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nightmaretour · 1 year
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Brain damage makes you cool and awesome actually
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quicksilvermad · 2 months
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I wish tumblr had a thing where you could see who you were mutuals with when you go to their blog because I can remember maybe five of your usernames off the top of my head and those are all people I know from LiveJournal.
@cincoflex @ladytalon1 @vr-trakowski @zionangel @gehayi
I have terrible memory now. My TBI wiped out my ability to recall names. I used to be able to remember everyone’s name and that’s a lost talent.
Sometimes I need help remembering how familiar I can be with someone on the internet. That’s why I wish it said “mutuals” even on the dash. Like…
This name and avatar are familiar but is mine familiar to them? I’m never sure anymore. How comfortable would they be with me messaging them?
I remember my LiveJournal mutuals because I’ve known them a long time.
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