Hey uh @ people with ME/CFS I got a question...

Everything I've read and heard about kinda seems to go hard on the idea that over-exerting yourself tends to lead to exhaustion that just never gets better at all no matter how long you rest after, and like I always assumed I didn't have it, because yeah overexerting myself tends to make me way more exhausted than is does other people and the exhaustion lasts like, a week or more sometimes, but it does eventually get better.

Like last weekend I went shopping for my birthday and also to an art gallery, and then I did a few small errands, and I conserved my energy as best I could, resting often, using mobility aids, ect, but I had to spend Mon-Fri in bed doing basically nothing aside from watching youtube, listening to music, and playing tetris because that was all I had the physical and mental energy to do. And granted that was dragged out a little because I had to go to the ER on Wednesday due to a migraine that got triggered by all this(bcs overexerting myself almost always triggers a migraine) and on Tuesday I sat in the car while we took my cat to the vet for a quick nail trim, but aside from that I just rested and even though I am feeling a bit better today I'm still just SO fucking tired and I know I'm going to have to take it easy for a few days more just to be sure I'm okay.

Which like, idk doesn't sound normal, that's for fucking sure, but I do know that with enough rest eventually I will return to my normal, which isn't everyone else's normal but is still normal enough that I can make myself easy meals and sit at my desk and talk to people and make phone calls and run errands without it killing me too badly.

But like idk my doctors seem convinced that I don't have any kind of autoimmune condition(although they haven't actually ran any tests they just keep insisting I'm not showing the signs of one and to keep up with physical therapy even when I tell them that just going clothes shopping for a few hours puts me on bedrest for the next 2-3 days) but idk again this does NOT seem normal. I legit feel SICK sometimes when I push myself too hard, like I think I'm coming down with a cold or something but it never actually turns into one, I just have that "eugh" sick feeling for a day or two and then it goes away once I've rested enough(also for clarification I never get any real cold/illness symptoms like a temperature and I mask literally everywhere and this ONLY happens after exertion so I don't think I'm actually getting sick). I also don't usually feel rested when I sleep but I always chalked that up to the insomnia more than anything?? But it does happen even when I have a good night's sleep with no tossing and turning or nightmares...

Anyway if anyone who does have Chronic Fatigue Syndrome could maybe explain to me what it's like for them I would appreciate it because idk what else could possibly be going on with me but I am so fucking tired of my doctors acting like there is nothing wrong. It might not be ME/CFS, and I have been diagnosed with fibromyalgia so maybe this is all just that? So I also wouldn't mind if someone who has fibro can tell me if this is all just fibro stuff. But idk I just want to know for sure, you know? (If it helps in addition to the fibro I also have arthritis, hEDS, orthostatic Intollerance, and occipital neuralgia.)