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anxious-and-in-pain · 2 hours
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I want people to understand. Sitting up hurts. Because of my hypermobility, weak core muscles and chronic fatigue, sitting up itself is exhausting and hurts. Do people realize how fucking weird and almost dehumanizing it is to have something as simple as sitting up hurt? Like something that people need and find so easy is utterly exhausting and painful to me. I know a lot of my chronically ill friends go through this. Sitting up just hurts!!
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anxious-and-in-pain · 3 hours
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anxious-and-in-pain · 4 hours
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ALL OF THESE REQUIRE GETTING OUT OF BED
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anxious-and-in-pain · 5 hours
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The undiagnosed chronic illness cycle
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anxious-and-in-pain · 6 hours
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[ID in alt text] 16/25+ of my LGBTQIA+ boots series! transgender flag themed 🏳️‍⚧️ stickers or prints of this series here
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anxious-and-in-pain · 8 hours
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LIFE ADVICE FOR YOUR TEENS AND EARLY TWENTIES (and probably beyond but I haven't made it much farther than that so far):
GO OUT BY YOURSELF
LEARN HOW TO NAVIGATE PUBLIC TRANSIT WITH NO SMART PHONE
TAKE ONLINE CLASSES
MAKE PEACE WITH DISAPPOINTING YOUR PARENTS
GO TO THERAPY IF POSSIBLE
FOLLOW AFTERCARE INSTRUCTIONS FOR NEW TATTOOS AND PIERCINGS
EAT A MEAL BEFORE DRINKING
DON'T MIX DRUGS
IT'S HARD TO BE YOURSELF WHEN YOU DON'T KNOW YOURSELF SO JUST KEEP TRYING NEW THINGS
THROW EVERYTHING AT THE WALL LIKE SPAGHETTI TO SEE WHAT STICKS
YOU WILL DISCOVER YOURSELF THE SAME WAY YOU DISCOVER NEW COFFEE SHOPS AND NEW BANDS
YOU WILL GET THERE
DON'T MAKE A LONG POST IN ALL CAPS BECAUSE YOUR VOICE WILL START TO HURT FROM SHOUTING
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anxious-and-in-pain · 9 hours
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"we'll get you in" and "someone can help you" do NOT mean the venue is accessible. if i call up in advance of an event and ask if i will be able to attend, i want to know if i can actually attend or if going there will be a disastrous waste of my time, money, and energy. if you have stairs just fucking say you have stairs, fucking hell, "uhhhh we can carry your wheelchair with you in it" is not an answer to whether there is step-free access
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anxious-and-in-pain · 21 hours
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Being disabled is like
Everything is more expensive, more difficult and more time consuming yet you have less money, less energy and less time.
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anxious-and-in-pain · 22 hours
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it's never too late to start brushing your teeth again. i basically never brushed my teeth for a whole 10 years. a decade. A DECADE. i still struggle to brush my teeth once a week, but it all started with brushing my teeth once every few months. so i mean it when i say brushing your teeth once a week, a month, a year, or even a decade, is better than nothing.
and still, nothing is not shameful. it is not immoral to struggle with self care. and it is also not pointless to keep trying. anything you can do, even if its wiping plaque off with a towel, is enough. it is good to take care of yourself however you can, even if it's just trying to muster the will to. reading this post is good, too.
i believe in you and i am proud of you, even in the smallest of steps. it's okay. you can give yourself grace.
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anxious-and-in-pain · 23 hours
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@asecretnerdcollection i’m gonna give explanations of each podcast because when i started listening to recs from the chronic illness community years ago, i had no idea what podcasts could be like. i mayyyy be going overboard but i figure too much is better than not enough. i listen to all of these for free via the Apple Podcasts app:
for fiction podcasts, there’s 1) the Juno Steel storyline of The Penumbra Podcast which follows a private investigator on Mars. i love the characters and how Juno changes over the seasons. 2) The Magnus Archives starts off like a collection of horror stories but morphs into a fully plotted storyline between the archives staff and horror stuff. 3) The Bright Sessions follows a therapist and her patients with secret super-powers and the facility which studies them. 4) The Strange Case of Starship Iris is another of my favorites. there are spaceships and aliens and government plots. reminds me of the TV show, Firefly. 5) Rabbits and Tanis are more mind-bending and imply that they’re in the real world. some of the beginning Tanis episodes are more horror-like than the following, with death and gore all leading to an interesting plot. also with government secrets, a hacker, and the radio host being sucked into the fray. Rabbits is less nature/animal and more tech. The Last Movie is a spin off of Tanis about a movie rumored to cause the audience to lose their sense of reality and all die gruesomely. 6) Wolf 359 is also in space, starting off with petty going’s-on between a communications officer and the others on his ship. 7) Girl in Space is a smaller production about a girl on a now-lone mission to observe a star and upkeep her ship. 8) Alice isn’t Dead is about a woman driving across the USA in search of her disappeared wife and interacting with surreal areas. 9) two fiction podcasts that play like movies are 36 Questions (about a wife who hid her identity from her husband, was revealed, and tries to get him back) and Shipworm (a doctor wakes up to a voice in his head telling him to follow a world-saving plan. only halfway through this one but i’m enjoying it). 10) others which i haven’t listened to but am interested in are King Falls AM, Worlds Beyond Number, and Midnight Radio
for learning podcasts, there’s: 11) The Weirdest Thing I Learned This Week, where friends go down rabbit holes of random things they found interesting. 12) Radiolab. what a classic. just look for titles which interest you and you’re golden. 13) Sawbones, covering medical stuff. 14) writing craft podcasts The Shit Nobody Tells You about Writing, Queries Qualms and Quirks, Write Now with Sarah Warner, The Publishing Rodeo, and #AmWriting. 15) chronic illness podcasts Spoonie Authors Pocast and Invisible Not Broken. 16) and, lastly, Pop Culture Detective deconstructs the narrative strengths and weaknesses of certain media
oops. hopefully i didn’t overwhelm everyone!!
does anyone have any good ideas for hobbies I'm stuck in bed most of the time unable to write and bored out of my mind. I crochet but can't for long as it fucks up my joints.
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anxious-and-in-pain · 23 hours
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why are we here? just to suffer? every 5 minutes i have to clean my glasses
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does anyone have any good ideas for hobbies I'm stuck in bed most of the time unable to write and bored out of my mind. I crochet but can't for long as it fucks up my joints.
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my love language is picking up your lingual idiosyncrasies and incorporating them into my own communication
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My body needs to remember that I am not its enemy
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Where's the Understanding Your Child's Chronic Pain: For Dummies book I'm in dire need
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your time is worthwhile if your disability means you have to rest most of the time. if you can only do a few events a month, or a year, that's alright. if you need to sleep a lot, lie down a lot, that time isn't wasted. it doesn't make your experiences any less meaningful. feeling like you're missing out on different activities doesn't make the ones you do any less worthwhile. being disabled and restricted in activities doesn't make you boring or diminish your worth. there's no threshold for things you have to do to "really experience life" - you experience it by being alive. and every disabled life is a life that's worthwhile
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